In Support of Riley Herman
Hello, dear family and friends,
We are reaching out with a heartfelt request. Our sweet Riley is just 5 years old, and she’s facing some big challenges with a brave heart. Riley was born with Down Syndrome and 2 separate heart conditions called Complete AV Canal and Tetralogy of Fallot. In November 2023, Riley had a Glenn procedure on her heart to improve blood flow to the lungs and reduce the workload on the single ventricle. Fast forward to 2025, in less than two weeks, Riley will be going in for a full heart reconstruction on October 16, and it is imperative that we have the support in place to help her recover well.
Riley is a joyful little girl who lights up every room with her giggles and smiles. Everyone who knows her loves her laughter and courage. She has touched so many hearts with her sunny spirit and loving nature. Now, it’s our turn to surround Riley with love, prayers, and practical support as she takes on this next step in her journey.
We’ve chosen to use SupportNow because it’s the only platform that brings everything into one place. Instead of spreading ourselves thin across multiple sites like CaringBridge, MealTrain, or GoFundMe, we can now journal updates, organize meals, use the Lend a Hand feature, and raise funds—all in one spot. Best of all, unlike other platforms, SupportNow doesn’t take away from the generosity of those who give. 100% of your gift goes directly to Riley and her recovery.
We have set up a support registry to help with medical expenses, meals during hospital and recovery days, and other needs that will arise as Riley heals. Our goal is to raise $10,000 so that Riley can get the very best care possible while also giving us space to focus fully on her.
If you feel moved to help, please visit Riley’s registry here:
👉 https://www.supportnow.org/riley-herman
👉 https://www.supportnow.org/riley-herman
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Updates
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Jul 15, 2026
CHOP Visit and BIG Update
Hello Everyone! Kyle and I apologize for not keeping updates active...
Dec 06, 2025
RILEY IS HOME!!!
After 7 weeks in the hospital, Riley FINALLY was able to come home!...
Dec 03, 2025
So... close...
Over the weekend, they started weaning Riley off of IV medications ...
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- Created Sep 26, 2025
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Thomas Helinsky 4 months ago • on 'CHOP Visit and BIG Update' update
Pjsauer07 4 months ago • on 'CHOP Visit and BIG Update' update
Sondrs Simmers 4 months ago • on 'CHOP Visit and BIG Update' update
Adammperry 4 months ago • on 'CHOP Visit and BIG Update' update
Hennessy731 11 months ago • on 'RILEY IS HOME!!!' update
Cynthia Cox 11 months ago • on 'RILEY IS HOME!!!' update