All Updates
Feb 28, 2026
Another week, another 3 appointments today for Maddox
Maddox finally had his first genetics appointment after 10 months. ...
Feb 18, 2026
Another EEG
I get to share a win for Maddox and our family today. 🤍Thor took Ma...
Feb 14, 2026
Cardiologist
Today Maddox had a cardiologist appointment because his blood press...
Feb 11, 2026
Another short ACTH update
Maddox has been super irritable and extra sleepy lately. We’re just...
Feb 07, 2026
A Week of Hope, Snuggles, and Small Wins
Maddox started his ACTH treatment this week, and we are feeling sup...
Feb 04, 2026
ACTH INJECTIONS
It’s been about a week since the last Maddox update. I think I just...
Jan 28, 2026
Infantile Spasms
This wasn’t the update I was hoping to share.Maddox had a follow-up...
Jan 27, 2026
DMI SESSION
This morning, Maddox completed a 2-hour DMI therapy session. He wor...
Jan 23, 2026
9 Months
In honor of 9 months out of my belly, here’s a little “get to know ...
Jan 19, 2026
Weekend Update
No big updates this weekend, just soaking in time together.Friday n...
Jan 15, 2026
INTENSE UPDATE
We are beyond excited and so incredibly grateful. Because of your l...
Jan 12, 2026
DME
We’ve officially started the process of getting Maddox two new piec...
Jan 10, 2026
A Real Update From Our Journey
Another Maddox update- this one not as positive. But let’s be real…...
Jan 09, 2026
Feeding Milestone: Cleared for Purées
Maddox had a swallow study on Monday to make sure it was safe to be...
Jan 07, 2026
Maddox’s Vision Impairment
CVI (Cortical Vision Impairment) đź‘€CVI means the brain has trouble p...
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