Maddox has been super irritable and extra sleepy lately. We’re just trying to take it one day at a time. Because of this, we haven’t really been able to do his therapy practices at home, which is a bit of a bummer, but I know this season is only temporary. 
 

We have his follow-up EEG next Wednesday, so we are really praying and hoping this treatment is what works. 🤞🏼 

His daycare has also been monitoring his blood pressure since we know that can be a side effect of ACTH. Unfortunately, his BP has been higher than his pediatrician would like, so we were given a referral to a cardiologist. We’re hoping they can get us in quickly and help us figure out next steps. 

 

All of this is so new to us, and we’re learning that every new treatment comes with its own worries and unknowns, but we’re staying hopeful and taking it one step at a time.