This morning, Maddox completed a 2-hour DMI therapy session. He worked SO hard for the full two hours straight, and his therapist said she was loving seeing some of the things Maddox was doing. 

 

Molly with @kidsptbythesea was amazing at thoroughly explaining the movements and walking me step-by-step through what to do with Maddox. She even let me try some of them myself so I could practice at home with him. It was actually pretty amazing being able to feel when he was really engaging in the skill. 

 

He definitely wasn’t a fan of all of them 😅, but honestly, that’s a good thing. It shows he’s processing and expressing how he feels. 

The most exciting part: we’ve scheduled his first intensive with her in April! Just one week, but as she and I both agreed—one week is better than none. AND we’ve also tentatively scheduled two weeks in July after we get back from our June intensive in PA. It feels like a lot, but Maddox needs it, and we’re willing to give our all to help him reach his greatest potential. 

After DMI, Maddox took a HARD nap while I cleaned up a little and put my feet up… but not for long before we headed to his GI appointment. It went well, and I have a much better understanding of the next steps as we get closer to a year and him needing more nutrition. We follow up again in a month so they can better track his growth curve and make sure he’s gaining weight appropriately. He looks chunky, but he’s only in the 5th percentile for weight. Nutrition is so important for Maddox, so we want to make sure he’s getting everything he needs. 

We ended the night at big sisters’ t-ball practice. It was cold, but Maddox talked up a storm until he finally fell asleep 😂. 

Tomorrow, we have another check-in at 10am for his overnight VEEG. Please, please, please pray that this new medication has stopped the hypsarrhythmia 🙏🏼💙