In Support of Keegans Journey Forward
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Keegan is a bright, determined 2.5-year-old little boy living with a rare genetic disorder called Snyder-Robinson Syndrome. Because of this condition, he currently cannot hold his head up on his own and is unable to sit, walk, or speak. He also faces LGS, very low muscle tone, and vision impairment. Since his epilepsy diagnosis, his family often describes life feeling almost like he’s inside a “glass bubble”—you can see his desire to engage with the world, but his body doesn’t always give him the pathways to do it.
His parents are doing everything they can to help him break through those barriers, even in the smallest, most meaningful ways. One of the most promising opportunities for him is a 2–3 week intensive therapy program at NAPA Center Charlotte, a center known for its heart, its expertise, and its remarkable outcomes for children with complex needs.
There, Keegan would work with highly skilled licensed therapists to work his fine and gross motor skills and his feeding and communication skills. NAPA uses a variety of hands-on therapeutic approaches to guide purposeful movements to help a child’s brain and body build new motor pathways. It’s especially helpful for kids who struggle with mobility, tone, and coordination—kids just like Keegan. Many families see improvements in strength, balance, head control, and overall engagement because intensive therapy helps wake up areas of the body that have been quiet for too long.
For Keegan, this intensive could be a turning point. His family is hoping to give him the chance to work toward early milestones—especially head control—opening the door to more independence, comfort, and interaction with his world.
The cost for three weeks of intensive therapy at NAPA, including physical therapy, occupational therapy, speech, and the necessary travel, is approximately $11,300.
To make sure he doesn’t lose momentum once he returns home, his family would also like to add two weeks of continued intensive work with a local PT, which is an additional $3,000.
Every contribution helps give Keegan access to the care, expertise, and hope he deserves as he works so hard toward greater strength and connection.
Mom, Kayla, will be posting updates here, so please follow along and share his story. Your support means more than you know.
Updates
Keep up to date as needs change.
Sep 04, 2026
Graduation Day!!
Today was the last day of 3 long, exhausting, and completely worthw...
Aug 31, 2026
The FINAL Week 😭
I seriously can’t believe it’s our last week!Keegan started this we...
Aug 28, 2026
Week 2 Complete!!
This week was a lot of focus on routine and building those consiste...
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Bev Reilly 16 days ago • on 'Graduation Day!!' update
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Bev Reilly 22 days ago • on 'The FINAL Week 😭' update