In Support of Keegans Journey Forward

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Keegan is a bright, determined 2.5-year-old little boy living with a rare genetic disorder called Snyder-Robinson Syndrome. Because of this condition, he currently cannot hold his head up on his own and is unable to sit, walk, or speak. He also faces LGS, very low muscle tone, and vision impairment. Since his epilepsy diagnosis, his family often describes life feeling almost like he’s inside a “glass bubble”—you can see his desire to engage with the world, but his body doesn’t always give him the pathways to do it. 

His parents are doing everything they can to help him break through those barriers, even in the smallest, most meaningful ways. One of the most promising opportunities for him is a 2–3 week intensive therapy program at All Kids Are Perfect, a center known for its heart, its expertise, and its remarkable outcomes for children with complex needs. 

There, Keegan would work with Dana, a highly skilled licensed DMI therapist.
DMI (Dynamic Movement Intervention) is a hands-on therapeutic approach that uses guided, purposeful movements to help a child’s brain and body build new motor pathways. It’s especially helpful for kids who struggle with mobility, tone, and coordination—kids just like Keegan. Many families see improvements in strength, balance, head control, and overall engagement because DMI helps wake up areas of the body that have been quiet for too long. 

For Keegan, this intensive could be a turning point. His family is hoping to give him the chance to work toward early milestones—especially head control—opening the door to more independence, comfort, and interaction with his world. 

The cost for two weeks of intensive therapy at All Kids Are Perfect, including physical therapy, occupational therapy, and the necessary travel, is approximately $11,300

To make sure he doesn’t lose momentum once he returns home, his family would also like to add two weeks of continued DMI with a local PT, which is an additional $3,000

Every contribution helps give Keegan access to the care, expertise, and hope he deserves as he works so hard toward greater strength and connection. 

Mom, Kayla, will be posting updates here, so please follow along and share his story. Your support means more than you know.

Kayla Newmyer
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Organized by Kayla Newmyer.

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Katimko22

Happy for you all ❤️
  • 15 days ago
  • on 'It's HAPPENING' update

Deah Hester

That’s wonderful !
  • 17 days ago
  • on 'It's HAPPENING' update

Barbara Canning

I’m so happy to read this news!
  • 17 days ago
  • on 'It's HAPPENING' update

Barbara Canning

Thank you for the update on your precious little guy. We are pulling for everything to go well on his procedures, etc.
  • 19 days ago
  • on 'April Update' update

Perri & Cody

We wish the best for Keegan!!!! Sending all of the love to your family!!!
  • 3 months ago
  • with donation

Sscojan

Hope all the testing helps pinpoint and relieve the seizures. Such a sweet face. I’ll keep checking in with Bob. 🤞
  • 4 months ago
  • on 'Keegan Update: ' update
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