Support Registry Update

Keegan Update:

In support of
Keegans Journey Forward
View Support Registry
We wanted to share a quick update with everyone who has been following along on Keegan’s journey and supporting us.

As we were nearing and even exceeding our original goal, Keegan had a follow-up appointment with his neurologist. At that visit, we learned that his epilepsy has unfortunately worsened. Because of this, he was referred to an epileptologist and a specialized neurology team for further evaluation.

Keegan has already completed a MEG (magnetic EEG) and still has a few additional scans and tests ahead. The goal of this testing is to better pinpoint where his seizures are coming from so the team can determine the best next steps, which may include targeted treatment or possible brain surgery.
Based on these findings, the epileptologist and neurology team recommended that we pause and adjust our original timeline for his intensive. Their hope is that Keegan can achieve some level of seizure relief or ideally seizure freedom before attending, so he can get the absolute most out of those three weeks.

While our original goal was March, we are now hopefully looking toward June. This gives us time to complete testing, follow medical recommendations, and set Keegan up for the best possible outcome when he does attend.

We are incredibly grateful for the continued love, encouragement, and support. Please stay tuned over the summer months. We are hopeful that this season will bring progress, healing, and exciting milestones we can share through photos and videos.

Thank you again for everyone who is following Keegan's journey and has made everything possible for him! 

Browse Current Support Options

View Options

Comments

Attymonaco

Thinking about you all and wishing you the best.
  • 18 days ago

Kgaiken78

I know a delay is not what you hoped for, and have to believe that there is purpose in the waiting. Praying for answers and a clear path towards new milestones for Keegan! Hugs to you all!
  • 18 days ago

Sscojan

Hope all the testing helps pinpoint and relieve the seizures. Such a sweet face. I’ll keep checking in with Bob. 🤞
  • 18 days ago