In Support of Jordyn Conn

Support Registry

Browse all the options to help, in one place.

Hello family and friends!

Jordyn is a brave, resilient child battling Alexander disease. This condition has brought significant challenges to Jordyn and her family. With Jordyn's mom dedicating her days to provide full-time care and dad working to support the family, every bit of assistance is invaluable. Jordyn also has a little brother who is at home, adding to the busy household dynamics. The family is in need of support to navigate these difficult times as smoothly as possible.

You can help make a difference in Jordyn's journey. We have set up a Support Registry with various options for those who wish to lend a hand.

  1. Choose from Support Registry options
  2. 'Share' to Spread the Word to family and friends
  3. 'Follow' Updates to stay informed

Thank you for your support!

Amber Conn
Beneficiary

Organized by Amber Conn.

Updates

Keep up to date as needs change.

Feb 14, 2025

February 14, 2015

It’s about time for our monthly update…Jordyn has remained out of t...
Jan 08, 2025

January 8, 2025

Jordyn had a very busy December! Between appointments, therapies, C...
Dec 17, 2024

Birthday Girl

Jordyn is 11 years old today! We celebrated her with a Lisa Frank p...
View All Updates

Follow Updates

Enter your email to receive notifications when updates are posted.

Get Updates

Gift Cards

Give a Gift Card

Lend a Hand

Volunteer for errands, childcare, or other needs.

Offer a Hand

Want to help but don't see a certain need listed? Offer a hand within certain categories and get notified when needs get added to the calendar.

Offer a Hand

Words of Support

Donate, send meals, or lend a hand to include words of support.

Amy Diamond

Love this for her!!!
  • 11 months ago
  • •
  • on 'January 8, 2025' update

Tonya Crites

Oh my goodness this is such good news and amazing! I’m so very happy for all of you. Good luck to you Amber, You are gonna do great ! Please tell Jordyn I said happy birthday. I love her and of course I miss her. ❤️🥳🎂🎈😍❤️
  • 12 months ago
  • •
  • on 'Birthday Girl' update

Kelly Crump

It will take the family only in the correct direction that is meant to be. Love, Jordyn’s smile with the Grinch. Wishing the whole family a wonderful holiday season 🎄🎁☃️♥️♥️♥️
  • 12 months ago
  • •
  • on 'Birthday Girl' update
Give Money
Lend a Hand
Send a Meal

Support Registry

Browse all the options to help, in one place.

All Options
Donate

What to know about SupportNow

One place for all support

Managing tough times is hard enough. We provide one place to bring together all of a family's support needs.

Supporter-led and families-first

Families don't always know what they need. We make it fast and simple to offer support, reducing the responsibility on families.

Transparency and Trust

Safe, secure, and transparent options to support families in tough times.