In Support of Jordan Lee's Journey

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Jordan Lee is a bright light for her whole family.  She was diagnosed when she was 3 months old with refractory epilepsy and shortly after it became clear that her epilepsy was a part of a larger story that included a number of other disabilities.  For Jordan's 4th birthday, we have decided to help her have as much accessibility to the world around her as possible, and that starts at home.  

Simple things like adaptive strollers and lifts for her wheelchair at home cost a small fortune.  Anne is busy applying for grants and resources but that will only cover so much.  We are coming around the Heller family in support of Jordan.  Our hope is to help them fundraise the difference not covered by insurance or grants.  

Anne will be posting updates of Jordan's Journey to accessibility here and we ask that you follow along and share as you are able.  

Thank you to all for being part of Jordan’s village!
Heller Support Team!

Those who would like to help the family can:
  1. Choose from Support Registry options
  2. ‘Share’ to Spread the Word to family and friends
  3. ‘Follow’ Updates to stay informed
Thank you.

Anne Thompson Heller
Beneficiary

Organized by Anne Thompson Heller and Abby Zachritz.

Lend a Hand

Volunteer for errands, childcare, or other needs.

No Needs Specified, Yet

The family hasn’t specified needs at this time. Offer a hand instead to let them know you are willing to help.

Words of Support

Donate, send meals, or lend a hand to include words of support.

Sandra Carroll

Happy Birthday Jordan. I love watching your progress and the joy in all the struggles you challenge. Wishing you another year of being you.
  • 27 days ago
  • on 'Jordan turned 5!' update

Judith Condon

“Happy Birthday” big girl!! Jordan you are so loved and so celebrated. You keep bringing joy into the lives of everyone who knows you. 🌹🩷
  • 28 days ago
  • on 'Jordan turned 5!' update

Donna Jago

Hi Anne, thanks for the update and photos. I loved seeing her in that great Halloween costume- thanks to Kate for all the hard work! It was fun to see you and Jordan in the road race and I wonder how she responded to the speed, wind in her hair a...
  • about 1 month ago
  • on 'Grateful for you!' update

Rhonda Prucker

I so love all the updates and hearing about all the things Jordan has accomplished. She is such an incredible little girl. 💜
  • about 2 months ago
  • on 'Grateful for you!' update

Judith Condon

How wonderful to find this update and pictures this morning! Just pure JOY emanating from my phone. Jordan you hold a special place in so many hearts including this grandma’s. I will continue to celebrate your many successes and send you love and...
  • about 2 months ago
  • on 'Grateful for you!' update

Salmeri77

So happy for all of you, especially Jordan. You are a warrior advocate! So proud of you all ❤️
  • 6 months ago
  • on 'Jordan's New Bathroom' update
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