In Support of Jaxson Cummings

**UPDATE 7/18** 
Hi everyone! Well, the last few weeks have reminded us that one breakthrough can also become one more battle. For the first time, Jaxson has been able to intentionally communicate with us using an eye-gaze AAC device. Watching him make choices, tell us what he wants, and interact with the world in a way he never could before has changed everything. It wasn’t just technology. It was our son finding a way to be heard.

Now we’re fighting to make sure that voice isn’t taken away.

We’re continuing to navigate insurance, advocate alongside his incredible therapy team, and push for the device that best meets his medical needs. We’re hopeful, but we’ve also learned that hope and preparation have to exist together.

Because of that, we’ve updated Jaxson’s SupportNow goal to $20,000. We’re praying we won’t need to purchase his AAC device ourselves, but if this journey has taught us anything, it’s that medically complex life is full of unexpected hurdles. Whether it’s specialized equipment, therapies, travel to specialists, adaptive needs, or simply the next challenge waiting around the corner, there is always something we’re working toward.

Yesterday, we had the opportunity to share Jaxson’s story during a news interview. We talked about his journey, the importance of communication for children like him, and the little bracelets that have become such a meaningful way for our community to stand beside our family. Every ‘Jaxson’s Crew’ bracelet, keychain, pen, represents someone who believes that children like Jaxson deserve every opportunity to thrive.

To everyone who has shared our story, sent an encouraging message, purchased a Jaxson’s Crew item, prayed for us, or simply cheered Jaxson on from afar… thank you. You have no idea how much your support has carried us through some incredibly hard days. We’re going to keep fighting for our little boy’s voice, just like we’ve fought for every milestone before it.

One step at a time.

Update 5/2/26
Jaxson had INCREDIBLE success with his DMI intensive last month. We can’t express how thankful we are that he was able to experience this and all that we learned. During this intensive therapy, we learned why Jaxson isn’t making the progress he could be, and dove into how his body needs sensory support to feel safe, which is A LOT of it. Basically he’s getting an overhaul on his therapeutic regime, we’ve even changed his regular weekly OT to another clinic altogether whose specialty is sensory things. Additionally, Jaxson will be going through two more rounds of intensive therapy. The one week we completed was the tip of the iceberg into helping him thrive. In a couple weeks he will be in a week long intensive with just the occupational therapist to really support those sensory needs and prepare him for a 2 week long DMI intensive with both PT & OT. Jaxson’s complex, so it makes sense that he needs a little more support in many different ways but we can’t make it happen alone. Which is why I’m sharing this fundraiser again to be open and honest with this journey, it’s expensive accessing these kinds of treatments and we are doing all we can to stay afloat. Together both intensives (May and June) will cost a little over $4000. Insurance doesn’t help with these kinds of therapies despite how beneficial they are which is so frustrating, I mean I have seen the progress with my own eyes. Jaxson’s birthday is also this month, he’s going to be GIVE! In lieu of gifts and those looking for ways to celebrate him, we cant think of a better way than with this. Thank you so much for being here, for rooting for our boy, and always being in his corner! 


Our son Jaxson was born with an incredibly rare genetic condition called 22q13 duplication. As a result of this duplication, Jaxson is medically complex and developmentally delayed, with significant care needs that require ongoing specialty care, therapies, and medical equipment. Jaxson has had airway and feeding difficulties and required lots of surgical intervention beginning early in life. He relies on medical technology to thrive, including a feeding tube for nutrition, cochlear implants for hearing, and needs frequent medical appointments, weekly therapies, and 24/7 hands-on care. Despite these tough challenges, he has worked so hard to keep progressing developmentally and we want to keep supporting him the best way we can. A few weeks ago Jaxson was able to participate in a week longDMI intensive that we initially fundraiser for to help him try this type of therapy with hopes it would benefit him greatly, and it did beyond our wildest imaginations, only because many of you helped get him there! 

We need your help to keep Jaxson thriving. Please consider taking one or more of these actions: