^{Support Registry Update}

Big Update!

In support of
Jaxson Cummings

Hi everyone! Well, the last few weeks have reminded us that one breakthrough can also become one more battle. For the first time, Jaxson has been able to intentionally communicate with us using an eye-gaze AAC device. Watching him make choices, tell us what he wants, and interact with the world in a way he never could before has changed everything. It wasn’t just technology. It was our son finding a way to be heard.

Now we’re fighting to make sure that voice isn’t taken away.

We’re continuing to navigate insurance, advocate alongside his incredible therapy team, and push for the device that best meets his medical needs. We’re hopeful, but we’ve also learned that hope and preparation have to exist together.

Because of that, we’ve updated Jaxson’s SupportNow goal to $20,000. We’re praying we won’t need to purchase his AAC device ourselves, but if this journey has taught us anything, it’s that medically complex life is full of unexpected hurdles. Whether it’s specialized equipment, therapies, travel to specialists, adaptive needs, or simply the next challenge waiting around the corner, there is always something we’re working toward.

Yesterday, we had the opportunity to share Jaxson’s story during a news interview. We talked about his journey, the importance of communication for children like him, and the little bracelets that have become such a meaningful way for our community to stand beside our family. Every ‘Jaxson’s Crew’ bracelet, keychain, pen, represents someone who believes that children like Jaxson deserve every opportunity to thrive.

To everyone who has shared our story, sent an encouraging message, purchased a Jaxson’s Crew item, prayed for us, or simply cheered Jaxson on from afar… thank you. You have no idea how much your support has carried us through some incredibly hard days. We’re going to keep fighting for our little boy’s voice, just like we’ve fought for every milestone before it.

One step at a time.

Jennifer Cummings
about 1 month ago

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Comments

Cynthia Whiteside about 1 month ago

Hi, I am a Paraeductor in CA, and studying to become a Special Education Teacher. I work daily with AAC devices like Tobii, with my Moderate Sever Autism and Extended Needs (medically fragil) students. I love the way Jaxson smiles and becomes elated to use his device. I sincerely hope you are able to keep it. It is an invaluable tool. As Jaxson grows he will be able to speak volumes with his device and his personality will continue to flourish and shine bright just like the star he is. Your story has touched my heart and help me to appreciate the sincere love you have for your family. Thank you for sharing. Cynthia W.

Emily S about 1 month ago

Hi! I saw your story on the wbir YouTube channel and just wanted to let you know there are many people in the comments who want to support Jackson but can’t find the link to this page 💙 I’ve tried responding and adding the link in the comments but I’m not sure if they are showing up. Rooting for yall and wanting to help get the word out. Hopefully WBIR will just include the link since many are asking.

Cindy Heckmann about 1 month ago

Jennifer, is there an address where I can send you a small check to help Jackson get the machine he needs?

Phyllis McCulloch about 1 month ago

Jennifer, I am very interested in sending a personal check to you. Please send a mailing address to send the check. Praying for Jason and entire family! Much love and prayers. Jesus cares and is helping. He is our Healer!!!

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