In Support of Asha Stephens
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Hi family and friends,
Asha was diagnosed with a DIPG/DMG brain tumor in late December 2023. She has been persevering with grace and grit since then. She underwent a full course of radiation in 2024, with steroid treatment afterwards. She bravely joined a trial for the drug ONC-201 and has had no new tumor growth until recently. She was able to continue to go to High School, spend time with her friends and be a teenager! Her travels have included a family trip to Santa Cruz California to be a bridesmaid in her aunt Melissa's wedding, a family trip Hawaii with her Dad, New York City at Christmastime, a special visit to an Culebra Puerto Rico, and a spiritual trip with her mom to Lourdes, France.
Asha was diagnosed with a DIPG/DMG brain tumor in late December 2023. She has been persevering with grace and grit since then. She underwent a full course of radiation in 2024, with steroid treatment afterwards. She bravely joined a trial for the drug ONC-201 and has had no new tumor growth until recently. She was able to continue to go to High School, spend time with her friends and be a teenager! Her travels have included a family trip to Santa Cruz California to be a bridesmaid in her aunt Melissa's wedding, a family trip Hawaii with her Dad, New York City at Christmastime, a special visit to an Culebra Puerto Rico, and a spiritual trip with her mom to Lourdes, France.
Asha is about to start another round of radiation because her tumor has grown. During this time, we want to ensure that Amy can take leave from work to spend as much time as possible with her. Your support would make a meaningful difference for their family.
Here is how you can help:
- Provide monetary support to help cover expenses.
- Sign up to drop off/deliver Wednesday night dinner to the family.
- 'Share' to Spread the Word to family and friends: Let’s get the message out to others who may wish to help.
- 'Follow' Updates to stay informed: Keep up with Asha’s journey and see how your support is making an impact.
Updates
Keep up to date as needs change.
Jul 02, 2026
Until we meet again <3
On Monday June 29th, we said goodbye to our beautiful Asha.For the ...
Jun 13, 2026
Spring into Summer
It has been some time since our last update, and we are incredibly ...
Dec 30, 2025
Happy Holidays and New Year !!!!
Hi everyone, I wanted to send a holiday and happy new year message ...
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- Created Jul 01, 2025
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Support Registry
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Words of Support
Donate, send meals, or lend a hand to include words of support.
Michelle McCluskey 5 days ago • with donation
Tom 16 days ago • on 'Until we meet again <3' update
Joe Wagner 16 days ago • on 'Until we meet again <3' update
Anonymous 16 days ago • with donation
Tom 17 days ago • on 'Until we meet again <3' update
Joanne S 18 days ago • with donation