In Support of The Gandy Family
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Support Shane Jr. ("SJ") on His Journey Forward
In November 2025, at just 3 months old, Shane Jr. ("SJ") was diagnosed with an AP3B2 gene mutation. Like many families facing a rare diagnosis, we found ourselves navigating unfamiliar territory, searching for answers, hope, and opportunities that could help SJ reach his fullest potential.
One of the most significant steps in SJ's journey came when we traveled to see Dr. Crawford at Neurosolutions in Texas. Following treatment, we witnessed changes that were nothing short of encouraging. SJ's head control improved dramatically, he began sleeping through the night, and his eye contact became stronger and more consistent. These milestones may seem small to some, but for our family, they represented tremendous progress and renewed hope.
Now, SJ is preparing for his next chapter: a two-week intensive at AKAP with Dana and the DMI team. These specialized therapies are focused on helping him continue building critical developmental foundations during these early years, when growth and neuroplasticity are at their highest.
The challenge, however, is that these opportunities come at a significant cost. The Neurosolutions treatment totaled approximately $65,000, which we were able to pursue through personal sacrifice and the incredible support of those who rallied around our family. This upcoming AKAP intensive, including therapy, travel, and lodging, will cost approximately $8,000 out of pocket.
The recommendation from SJ's care team is to continue participating in intensive therapies every three to four months. These early years are incredibly important, and we want to do everything we can to give him access to opportunities that may help him build skills, strength, and independence over time. Unfortunately, these treatments are not covered by insurance, making the financial burden substantial.
More than anything, we created this page as a place for family, friends, and supporters to follow SJ's journey, celebrate milestones alongside us, and cheer him on as he continues to work hard every day. Your encouragement, prayers, messages, and support mean more than words can express.
As a Catholic family, we deeply appreciate your prayers for SJ, our family, and the medical professionals and therapists walking alongside him. We believe that no family is meant to carry these challenges alone, and we are grateful for every person who chooses to be part of his story.
"For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future." — Jeremiah 29:11
Why a SupportNow page? We've chosen to use SupportNow because it allows more of every gift to directly benefit SJ and our family compared to platforms we've used in the past. It also gives us a simple way to keep everyone updated through the journal feature and to share practical needs through the helping hands section as they arise. Whether you choose to follow along, pray, share updates, lend a hand, or contribute financially, we are grateful to have you as part of SJ's village. ❤️
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- Created Feb 10, 2026
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