In Support of Shannon Dingey

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I was diagnosed with Indolent Systemic Mastocytosis back in 2018 but it recently progressed to Aggressive Systemic Mastocytosis. As a result, I’m beginning more aggressive treatment which right now is oral chemo, Ayvakit. In addition, I have been battling neuropathy (CIDP) since September 2023; I’m currently receiving IVIG therapy as the course of treatment. Due to the complexity and rarity of my case I'm traveling to see specialist. 

I’m currently unable to work due to the severity of these illnesses, their impact on my health quality of life, infusions, and hospital visits. 

I would love for you to follow my journey as I share frequent health updates. 

If you would like to donate to assist with medical expenses and living expenses- gas, food, bills, etc. that would be greatly appreciated!! :)

Shannon Dingey
Beneficiary

Organized by Shannon Dingey.

Updates

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Oct 11, 2024

Diagnosis Explanation

Some background and general info on Systemic Mastocytosis (SM). SM ...
Oct 10, 2024

Second Opinion & request for donations

My hematologist referred me for a second opinion since the disease ...
Oct 10, 2024

Treatment Update

I have been back on the Ayvakit since Sept 11th, at 100mg, and I’m ...
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