Hello, dear family and friends!

We want to share the journey of our little fighter, Mighty Molly. Shortly after she was born, Molly faced a life-threatening condition called pulmonary hypertension and was Life-Lined to Riley Children's Hospital NICU. Doctors gave us only a 25% chance of survival, and two weeks later, we discovered she had a rare genetic anomaly. Her genetic condition involves missing genes and a small duplication on her 18th Chromosome, which affects many parts of her body. Despite the limited information available about her condition, we've committed to supporting Molly in her brave fight.

After spending two months in the NICU, Molly was finally discharged. 

Early intervention is vital for her development, and she's been undergoing various therapies since she was three months old. We have tirelessly searched for specialized surgeons and therapists to help her. A crucial part of her therapy has been Dynamic Movement Intervention, which helps improve her balance, posture, and movement. These therapies and treatments are not currently covered by insurance and raising a child with a disability can be very costly. Each intensive is approximately $4,000, and staying consistent with these treatments are very important long-term. 

Our village has continuously rallied around our family, so she can continue receiving the support that truly makes an impact on her strength, self confidence and drive to challenge herself in new ways. 

This is the first time Molly doesn't have a surgery scheduled in 5 years. She has undergone many procedures, that always required long recoveries, complications and healing. Now, she has a chance to really thrive!

Our goal is to increase her 1:1 sessions as well as her 2 week intensives from 1 to 4 through out this year. Your generosity would also help us acquire equipment, support garments and shoes that are also not covered by insurance to use in our home.

We need your help to continue supporting her journey.

To learn more about Molly's condition, please visit https://www.chromosome18.org/ for more details in support, education and research. 

Thank you for cheering Molly on and sending us so much love support!