In Support of The Marley Family

Hello! We are the Marley family- Ted, Caroline, Charlie, Oliver & Mazie! Our youngest two were born effected by a rare metabolic disease- S- adenosylhomocysteine hydrolase deficiency. Our son Oliver passed away on the 4th of July in 2021 just a few days before his first birthday while waiting for a liver transplant. In May 2023 we had a little girl, Mazie, who was born effected by the same disease. We spent 4 months in the nicu before coming home in late September 2023 and then on December 6th Mazie was readmitted to the picu for several health complications, she has needed a few minor procedures and is currently receiving all of her nutrition from TPN. Mazie is finally going to be discharged after a 3 month stay and our family will finally get to be home again, I have been 2 hours away with Mazie while Ted is back home working and Charlie stays with my parents during the week for school, needless to say, it’s been a lot on our family. We have had many ask how they can help support our family, the biggest thing we can ask for is prayers prayers prayers! I also thought after being gone for several months, grocery giftcards or meal gift cards would be a big help! We are planning to go to Pittsburgh, PA at the end of March to see Mazies liver transplant team as well so we will only have a few weeks home before that trip. If you would like to help, please do so here and above all, thank you for following and praying for our family!

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Caroline Marley
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Organized by Caroline Marley and Caroline Marley.

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Feb 29, 2024

New Need - Meal gift cards/grocery gift cards

As we are prepping to head home after a 3 month hospital stay, meal...
Feb 29, 2024

In Support of The Marley Family

The Support Registry was just created.You can see all support oppor...

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So thankfully for all who support this Family!!!
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  • Created Feb 29, 2024
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