In Support of Samuel Schwartz
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Meet Samuel đź’›Â
Samuel was born in 2025 and has been diagnosed with Kabuki syndrome—an incredibly rare genetic condition with only about 1,500 known cases worldwide.Â
Kabuki syndrome affects many areas of Samuel’s development. He has significant delays, low muscle tone, and differences affecting his internal organs. While he once depended on oxygen, he now only needs it when he’s sick—an incredible step forward.Â
Samuel is working on foundational skills most children develop naturally. He is missing infant reflexes on the left side of his body and in his feet, making early milestones especially challenging—but his family is helping him build and integrate those skills for future mobility and independence.Â
He is fighting to crawl, to walk, and to do more—every bit of progress is hard-earned.Â
Samuel is surrounded by his parents, Sara and Colton, and his big brother Arysen (4), who cheers him on every step of the way.Â
To give Samuel the best chance, his family is pursuing a range of therapies and interventions not covered by insurance, including:Â
- Dynamic Movement Intervention (DMI) to build strength and movement patterns (starting around $5,400+ per intensive)
- Stem cell therapy through Total Wellness Center with Dr. Proefrock (starting at $8,500 before travel), with hopes of pairing treatment alongside nearby laser therapy and EM field therapy
- EM field therapy + laser + reflex integration, often done together (EM field therapy is $550/hour)—designed to stimulate muscle activation in a way that’s difficult to replicate manually, often described as dozens of muscle contractions every minute during treatmentÂ
- Laser therapy (including at-home use) (devices can total $14,000–$15,000) and HBOT (hyperbaric oxygen therapy) to support healing and recoveryÂ
- Â Ongoing therapies to help Samuel retain and build on every gain he makesÂ
Samuel recently completed a round of therapy costing $3,600, with $8,400 already scheduled between now and August. His family hopes to continue adding at least one treatment week per month, especially if they are not traveling for stem cell therapy.
Capitalizing on these early years is critical. The progress Samuel can make now has the potential to shape his mobility, independence, and long-term health.
But with a limited window of time—and none of these therapies covered by insurance—the financial pressure adds up quickly. Between therapies, travel from Iowa, lodging, and at-home equipment, the Schwartz family is carrying a tremendous amount as they work to give Samuel the best possible chance at life.
Estimated 6-month cost: $25,000–$40,000+
We plan on setting a progressive goal that grows over time. As we reach each milestone, we will share updates openly so you can see exactly how your support is helping Samuel. We are committed to being transparent every step of the way, and we are so grateful to have you alongside us in this journey.
How you can support Samuel:
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-  Donate if you’re able—every dollar goes directly toward therapies and careÂ
- Â Share his story to help grow his support systemÂ
- Â Follow this page for updates, progress, and upcoming fundraisersÂ
Sara and Colton will continue sharing Samuel’s journey, celebrating every step forward, and inviting others to be part of what they are building for his future.
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It takes a community—and every bit of support helps Samuel move closer to crawling, walking, and greater independence. 💛
Updates
Keep up to date as needs change.
May 06, 2026
A Big Step for Therapy At Home!
You may have noticed the frequent use of lasers on Samuel in the ph...
May 04, 2026
Samuels on the Move!
After the first couple days of therapy Samuel discovered he can sco...
Apr 30, 2026
Heading Home đźŹ
We wrapped up our final session of therapy this week just now. We a...
- Created Apr 21, 2026
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