In Support of Roy Mackey
Support Registry
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Meet Roy:
At just 2 years of age, Roy has already
shown incredible strength and resilience. Roy survived a stroke in utero that
caused a brain injury and resulted in Cerebral Palsy. He suffered from Intrauterine
Growth Restriction and was delivered via emergency C-section at just 34 weeks. Roy
spent 3.5 months in three different NICUs until he was able to come off of oxygen
support and go home with his family. His parents, Ines and Doug, are doing everything
they can to help him reach his milestones and gain independence.
Simple
skills that come naturally to other children take tremendous effort for Roy. Right
now, Roy is working hard to learn how to eat food—he's currently fed almost entirely
by g-tube. He's also working hard in physical therapy to gain the strength, coordination,
and gross motor skills to that, by the grace of God, will eventually help him learn
to crawl, sit, and walk. Every gain he makes requires countless hours of therapy,
dedication, and support.
The cost of helping a child with a disability
and complex diagnosis can be overwhelming, but Iness and Doug know that doing whatever
it takes is worth it. They are pursuing life-changing treatments and therapies for
Roy, including:
- Duke Stem Cell Intervention: $15,000, plus about $2,000 in travel
- All Kids Are Perfect Intensives (North Carolina): two physical therapy intensives, two weeks each, with travel – around $16,000 total
- Hyperbaric Oxygen Therapy and Neurop: Hundreds of dollars per dive. A home chamber is about $14,000, and treatment with world leader Dr. Harch in New Orleans would be another $14,000
- Masgutova Neurosensorimotor Reflex Integration (MNRI) Intensive Therapy (Orlando): 5 days, with travel around $7,000 total
- Pediatric Feeding Institute Intensive (Boca Raton): one week, about $7,000
- Infinity Neuromotor Development Center Intensive (Iowa): two weeks, with travel, around $12,000
These
are just the beginning of the expenses that Roy’s family is facing on their journey
to give him the best chance at independence.
Ines and Doug
will be posting updates here to share Roy’s progress, and they invite you to follow
along and support his journey. Together, we can cheer him on as he fights to reach
every milestone.
Join us in supporting #TeamRoy — every
gift makes a difference in helping Roy build the stepping stones to a brighter,
more independent future.
Those who would like to help the
family can:
- Choose from Support Registry options
- ‘Share’ to Spread the Word to family and friends
- ‘Follow’ Updates to stay informed
Thank you.
Updates
Keep up to date as needs change.
Feb 16, 2026
So proud of Roy at his aquatic physical therapy on Friday! 🐟💦
Roy is getting more comfortable in the water and was practicing his...
Jan 07, 2026
New Year, New Goals
Roy worked hard during his physical therapy session today as he pra...
Dec 13, 2025
✨ Roy’s Surgery Update ✨
Roy is out of surgery to correct his tethered cord and we are grate...
- Created Sep 09, 2025
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- Disability
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Support Registry
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Lenore Skelton
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