In Support of Jack's Journey
Support Registry
Browse all the options to help, in one place.
Jack is 18 months old and already showing the world exactly who he is: feisty, inquisitive, and curious. Born extremely premature at 25 weeks, Jack has faced significant medical challenges from the very beginning, including Cerebral Palsy caused by a severe bilateral grade 3/4 IVH, along with hydrocephalus, CVI (cortical visual impairment), and cPVL. Still, anyone who meets Jack quickly sees that his diagnosis does not define him.
His parents, Lisa and John, are doing everything they can to give Jack every building block possible during this critical window of development. By Jack’s side is his twin brother, cheering him on, celebrating every gain, and reminding everyone that Jack is never doing this alone.
Jack is preparing for a second round of cord blood infusion at Duke, followed by DMI intensive therapy. The cord blood infusion at Duke is approximately $20,000, including travel, and each DMI intensive is about $5,500, also including travel. The hope is to complete two DMI intensives before Jack reaches 35 pounds, when he will age out of eligibility.
Every milestone Jack reaches is the result of early intervention, relentless advocacy, and community support. You can support Jack’s journey, follow along for updates, and share his story to help keep momentum strong as he continues working toward greater strength, mobility, and independence—one hard-earned gain at a time. \U0001F499
Updates
Keep up to date as needs change.
May 12, 2026
Jack is scheduled!!!!
Jack is officially on the schedule with Duke for his second cord bl...
May 03, 2026
Progress Update
Jack's been putting in a good amount of time in his stander with hi...
Apr 08, 2026
Thank you!
Jack and our entire family just wanted to jump on and say thank you...
- Created Jan 23, 2026
- •
- Report Support Registry
Support Registry
Browse all the options to help, in one place.
Words of Support
Donate, send meals, or lend a hand to include words of support.
Amy Kindler
Bernardine
Amy Kindler
Melfishermuseum
David Halladay
Susan Lomeli