In Support of Jack's Journey
Support Registry
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Jack is 18 months old and already showing the
world exactly who he is: feisty, inquisitive, and curious. Born
extremely premature at 25 weeks, Jack has faced significant medical
challenges from the very beginning, including Cerebral Palsy caused
by a severe bilateral grade 3/4 IVH, along with hydrocephalus,
CVI, and cPVL. Still, anyone who meets Jack quickly sees that his
diagnosis does not define him.
His parents, Lisa
and John, are doing everything they can to give Jack every building
block possible during this critical window of development. By Jack’s side
is his twin brother, cheering him on, celebrating every gain, and
reminding everyone that Jack is never doing this alone.
Jack is
preparing for a second round of cord blood infusion at Duke, followed
by DMI intensive therapy. The cord blood infusion at Duke
is approximately $20,000, including travel, and each
DMI intensive is about $5,500, also including travel.
The hope is to complete two DMI intensives before Jack reaches 35 pounds,
when he will age out of eligibility.
Every milestone Jack reaches
is the result of early intervention, relentless advocacy, and community
support. You can support Jack’s journey, follow
along for updates, and share his story to help keep momentum
strong as he continues working toward greater strength, mobility, and independence—one
hard-earned gain at a time. \U0001F499
Updates
Keep up to date as needs change.
Mar 23, 2026
We love PROGRESS!
We are about 3 1/2 months out from Jack's first Duke stem cell infu...
Feb 27, 2026
NEW Milestone!
Jack has learned a new skill! He is now rolling from back to belly,...
Feb 06, 2026
New Equipment for a Happy Boy
Jack got his new Activity Chair this week! He loves how versatile i...
- Created Jan 23, 2026
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Support Registry
Browse all the options to help, in one place.
Words of Support
Donate, send meals, or lend a hand to include words of support.
Barbara Milburn
Amber & Chad
Aunt Kissy
Mike Romano
Jim Piperato
Jim Piperato