Jul 23, 2025

And we are Walking!!! Good news

We packed Ethan, the Trexo, walker and treadmill in the car this am...

Jul 15, 2025

New Update - It's been a while!

It has been a while since I have updated. While I agree you would t...

Jun 07, 2025

Unboxing and Assembling Day!

Received Ethan's new walker, Trexo robotic legs and treadmill yeste...

Jun 06, 2025

Ethan’s Trexo is arriving today!

Just a quick update to all of you to let you know that Ethan’s Trex...

May 23, 2025

New update on Trexo

I heard back from Trexo team. Final testing and review on the devic...

May 22, 2025

Hoping we will see the trexo soon

It has been a few weeks since I last posted an update. It’s been a ...

May 01, 2025

Trexo Robotic Legs are Ordered!!!!

I am so happy to say that after 4 months and lots of help and suppo...

Apr 17, 2025

Good news update!

Haven’t been in touch for over a week, but lots has happened. We ha...

Apr 06, 2025

Almost 1/2 way to our goal!!!

It’s has been a good week. Ethan went to see the long anticipated M...

Mar 28, 2025

Watch Our Local TV Interview & Help Us Reach Our Fundraising Goal!

I am attaching the link to our debut on TV. Hope that you will take...

Mar 23, 2025

Exciting update

Happy Sunday to all.Ethan and I had a wonderful time at Your TV on ...

Mar 18, 2025

On track for our TV interview on Wednesday

We have firmed up our schedule to be on local tv on Wednesday. Etha...

Mar 11, 2025

Weekly update

Ethan and Jeff are playing Disney’s Dreamlight valley tonight as I ...

Mar 04, 2025

A Heartfelt Thank You!

I just wanted to take a moment to say thank you from the bottom of ...

Feb 25, 2025

Ethan not having a good week

This is the reality of Ethan living with AHC. All of the best laid ...

Feb 23, 2025

Busy week, some good progress.

Lots happened this last week and hoping it all falls in place and w...

Feb 21, 2025

We are going on local TV

Ethan and I are going on local TV. I am not sure if it’s live or re...

Feb 14, 2025

What’s been happening

It’s been over a week since I last posted as we have been super bus...

Feb 04, 2025

Ethan had a good day!

Wanted to let you all know that Ethan had a good day today and didn...

Feb 03, 2025

Ethan had a hard day today.

With Ethan’s condition he has good days and some really bad days. T...

Jan 30, 2025

Thankyou so much for supporting Ethan

I find it incredible that in just a few short weeks, we have reache...

Jan 26, 2025

Welcome to Sunday!

What a beautiful day it is today outside. Yes it is still cold, but...

Jan 24, 2025

Mid week update

We have been working this week to get paperwork together to apply f...

Jan 18, 2025

Today is National AHC Day!

This day is dedicated to all the individuals diagnosed with Alterna...

Jan 16, 2025

One week in...we are so thankful!

A week ago today we started to share this fundraiser that Jenna set...

Jan 11, 2025

Saturday Morning Update

Since we kicked off the fundraiser we have had a busy few days with...

Jan 08, 2025

Wow..blown away by progress so far!

Thank you so much to everyone that has donated and those that have ...