Today is National AHC Day!
In support of
Help Ethan Walk with Trexo Robotics
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Help Ethan Walk with Trexo Robotics
This day is dedicated to all the individuals diagnosed with Alternating Hemiplegia of Childhood (AHC). AHC is a one in a million disease and Ethan is our AHC champion!
He was diagnosed at 2.5 yrs old. AHC has robbed him of so much; because of AHC Ethan will never be able to do things that most take for granted. That being said Ethan is one of the bravest, kindest, happiest people I know. He is my hero..he builds me up when I am having a bad day and never complains about the lot he has been given in life.
Yes, AHC took away his ability to walk, to use the left side of his body and so many other things..but it cannot take away the hope, the love and the desire Ethan has to live his best life. Thanks to all of you and to Trexo we have the chance to give him something back - his ability to walk and we cannot wait until we get the Trexo and make this happen.
He was diagnosed at 2.5 yrs old. AHC has robbed him of so much; because of AHC Ethan will never be able to do things that most take for granted. That being said Ethan is one of the bravest, kindest, happiest people I know. He is my hero..he builds me up when I am having a bad day and never complains about the lot he has been given in life.
Yes, AHC took away his ability to walk, to use the left side of his body and so many other things..but it cannot take away the hope, the love and the desire Ethan has to live his best life. Thanks to all of you and to Trexo we have the chance to give him something back - his ability to walk and we cannot wait until we get the Trexo and make this happen.
Today we raise an index finger in honour of International AHC Day and honour Ethan and the individuals who fight every day with this incredibly difficult disease.
Love
Claire
Comments
Ted Thompson