In Support of Edith Rose
Support Registry
Browse all the options to help, in one place.
Hello, family and friends.
We need your help for little Edith Rose. She was born very early, at just 22 weeks. Now, she is facing a tough battle, diagnosed with a rare condition called CLIFAHDD. This affects her brain stem, making her fight every day. The situation is urgent, and we are reaching out to our community to help her and her family through this challenging time.
We have set up a support registry to make it easier for you to contribute. Every little bit helps and brings hope to Edith Rose and her family. Hereβs how you can help:
- Choose from Support Registry options.
- 'Share' to Spread the Word to family and friends.
- 'Follow' Updates to stay informed.
Updates
Keep up to date as needs change.
Edith turning 2 !!
PATCHES for Edith
Not one I expected
Gift Cards
- Created Oct 29, 2025
- β’
- Disability
- Report Support Registry
Support Registry
Browse all the options to help, in one place.
Words of Support
Donate, send meals, or lend a hand to include words of support.
Robin Turbyfill 5 days ago β’ on 'Edith turning 2 !!' update
Anonymous 6 days ago β’ with donation
Belinda 6 days ago β’ with donation
Luzmaria DeLeon 20 days ago β’ on 'Edith turning 2 !!' update
Anonymous about 1 month ago β’ with donation
JoAnn Twaskas 2 months ago β’ with donation