In Support of Edith Rose

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Hello, family and friends.

We need your help for little Edith Rose. She was born very early, at just 22 weeks. Now, she is facing a tough battle, diagnosed with a rare condition called CLIFAHDD. This affects her brain stem, making her fight every day. The situation is urgent, and we are reaching out to our community to help her and her family through this challenging time.

We have set up a support registry to make it easier for you to contribute. Every little bit helps and brings hope to Edith Rose and her family. Here’s how you can help:

  1. Choose from Support Registry options.
  2. 'Share' to Spread the Word to family and friends.
  3. 'Follow' Updates to stay informed.

Kelly Smith
Beneficiary

Organized by Kelly Smith.

Updates

Keep up to date as needs change.

May 28, 2026

PATCHES for Edith

Ok yall! We found some patches to try with Edith! But we need your ...
May 05, 2026

Not one I expected

This update is one I didn’t expect to make. EDITH IS DOING AMAZING!...
Mar 31, 2026

Edith is loving her home

Edith’s condition has placed her into a group home while dad and I ...
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Words of Support

Donate, send meals, or lend a hand to include words of support.

DD Danchak 9 days ago β€’ with donation

Katie and I lift Edith and her family up to Jesus,the Great Healer

DD Danchak 9 days ago β€’ on 'EDITH LEFT THE NICU' update

I'm deeply touched and inspired by Edith's resilience, fight, and beautiful spirit.Your family love,hope,and desire to give Edith her best life move me to tears. My daughter, Katie,19, is nonverbal, only walks with assistance, and has a complicat...

Guywadams 20 days ago β€’ with donation

I wish it could be more

Maria 22 days ago β€’ with donation

All love for Edith πŸ’–πŸ’–πŸ’–

Carol Pautsch about 1 month ago β€’ with donation

Go Edith Go!

Natalienkgraham about 2 months ago β€’ with donation

I have a baby girl around Edith’s age. Sending our love from Hawaii
+ 59 other supporters since Oct 29, 2025
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What to know about SupportNow

One place for all support

Managing tough times is hard enough. We provide one place to bring together all of a family's support needs.

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Families don't always know what they need. We make it fast and simple to offer support, reducing the responsibility on families.

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