In Support of Edith Rose
Hello, family and friends.
We need your help for little Edith Rose. She was born very early, at just 22 weeks. Now, she is facing a tough battle, diagnosed with a rare condition called CLIFAHDD. This affects her brain stem, making her fight every day. The situation is urgent, and we are reaching out to our community to help her and her family through this challenging time.
We have set up a support registry to make it easier for you to contribute. Every little bit helps and brings hope to Edith Rose and her family. Here’s how you can help:
- Choose from Support Registry options.
- 'Share' to Spread the Word to family and friends.
- 'Follow' Updates to stay informed.
Updates
Keep up to date as needs change.
Sep 28, 2026
Edith is 2 !!!!!
It’s official. Our little nugget is 2 years old! Overcoming the Imp...
Aug 26, 2026
Edith turning 2 !!
Wow! Edith is about to be 2 years old! She’s been such a fighter an...
May 28, 2026
PATCHES for Edith
Ok yall! We found some patches to try with Edith! But we need your ...
Send a gift card
- Created Oct 29, 2025
- •
- Disability
- Report Support Page
Support Page
Browse all the options to help, in one place.
Words of Support
Donate, send meals, or lend a hand to include words of support.
Georgia Sexton about 1 month ago • with donation
Chrystal Griffith about 1 month ago • on 'Edith is 2 !!!!!' update
Landa.uww about 1 month ago • on 'Edith is 2 !!!!!' update
Dana Luckey about 1 month ago • with donation
Anonymous about 1 month ago • with donation
Elliott Gilbert about 1 month ago • with donation