In Support of Coleman Conner
Hi, my name is Coleman. I'm a six year old boy living Lennox Gastaut Syndrome and a very rare genetic mutation on the gene, ADCY2. There is currently no name for what I have as I am one of 12 people in the world who has it.
I struggle with daily seizures, development delays and very low muscle tone. I'm working so hard every day to get stronger and learn more.
I love going to school, riding bikes, my family, music and being outside.
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- Created Oct 29, 2026
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