All Updates
Mar 06, 2026
Life
It has been a while. Avery is working hard on standing and sitting....
Feb 23, 2026
Milestones
One year ago you just came off your breathing tube. Something even ...
Feb 17, 2026
Mobility
I wish I could upload a video. Yesterday in the pool for hydrothera...
Feb 09, 2026
Entire feed by mouth
This little turkey ate her entire feed by mouth and is nice and sle...
Feb 09, 2026
Feeding tube
Avery is rocking it in the eating world! She’s up to taking 75 mls ...
Feb 03, 2026
Sitting up
Progress is progress. It is only for a few seconds at a time but th...
Jan 29, 2026
Stem cell day
Today was the big day! Avery got 34 million stem cells infused into...
Jan 19, 2026
Weight bearing
Little ma’am is suited up with orthotic equipment from head to toe....
Jan 15, 2026
The BEST news
What was once a huge hope for us is now becoming a reality. Yesterd...
Jan 14, 2026
Feeding
Avery was born with severe acid reflux . In the hospital we tried a...
Jan 12, 2026
Eye update
Today, we received an official diagnosis of cortical vision impairm...
Jan 10, 2026
Turning 1
Our sweet girl is almost one! It’s amazing to see the progress she ...
Jan 08, 2026
Stander
Here is Avery in her stander. This adaptive piece of equipment assu...
Jan 07, 2026
PT
Avery is working hard in PT on trying to stand up. She has AFOs whi...
Jan 07, 2026
Day in the life
First, I want to thank everyone for the abundance of support. We ar...
Jan 06, 2026
January 06, 2026 Update
Thank you for your support on Avery's journey. We want to express o...
Support Registry
Browse all the options to help, in one place.