Support Registry Update

Feeding tube

In support of
Avery Majano
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Avery is rocking it in the eating world! She’s up to taking 75 mls by mouth. Today, we met with nutrition and she switched to Kate Farms. This is a higher caloric drink meaning she doesn’t have to take as much volume. This is huge! They are very hopeful she will be able to get the g-tube out. In addition she has been using a supportive chair for eating called a tumble form. However, she’s starting to gain some strength and we are finally going to be able to use her beautiful high chair! #teamavery 

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Comments

Nicholas.cole1988

I look forward to these updates, and get excited when I see updates in my email!! #TeamAvery
  • 2 months ago

Laura Marino

So great to hear all the progress she is making. Truly amazing!!
  • about 2 months ago