Updates for Johanna Mitchell

Sep 15, 2026

Neurosurgery MRI

Today Miss Jo had a one month follow up MRI with neurosurgery to tr...

Sep 08, 2026

Day at a time

Hello all!We continue to take things one day at a time, and celebra...

Aug 22, 2026

A Prayer about our Bodies

A prayer from Nadia Bolz-Weber about bodies. It is quite lovely and...

Aug 11, 2026

Home!

We arrived home at 10:30. It feels so good to have everyone home at...

Aug 11, 2026

🥳

Discharge papers are being processed! 💕

Aug 10, 2026

Still here

Scans were unchanged but we didn’t get to come home tonight! Hopefu...

Aug 10, 2026

MRI TODAY!

Please hold Johanna in your prayers today as she has another MRI an...

Aug 07, 2026

Small delay

The MRI today did show some increase in the size of the ventricles ...

Aug 07, 2026

Good news today!

We got the NG (feeding tube) out this morning.We are currently rece...

Aug 05, 2026

8/5- New Room

Today Johanna got downgraded to a regular peds patient. We just nee...

Aug 04, 2026

DRAIN IS OUT!

The drain is out we are one step closer to being able to go home!

Aug 03, 2026

8/3

Nothing new to report today!Our little lady is doing so well! The P...

Aug 01, 2026

8/1

We are doing really well today! Jo is taking full bottles, (60 mls ...

Jul 30, 2026

7/30- Far less tubes

Today she is breathing room air and had many of our lines removed! ...

Jul 29, 2026

Off the vent

She is off the vent and back where she belongs… her mommy and daddy...

Jul 27, 2026

7/27 Update

It’s been a pretty quiet day today! Last night Johanna had both an ...

Jul 26, 2026

7/26 Update

Today has been a pretty good day!Our goal was to have a quiet and b...

Jul 25, 2026

Story of what Happend 7/23-7/25

On Thursday, July 23, Johanna woke up around 8 am very agitated and...