Dec 04, 2025

Fundraiser Dec 15, 2025 in Snohomish county

We are beyond blessed to partner with Malachi favorite place McDona...

Dec 02, 2025

23 days Finally HOME!

UPDATEWe made it home last night Nov 27th after 23 days away tuckin...

Nov 27, 2025

Thanksgiving 2025 Update!

Yesterday marked 20 days since Malachi went in for what should have...

Nov 26, 2025

Tuesday November 25th

Day 19! TUESDAY November 25, 2025Today has been rough on Malachi.Th...

Nov 25, 2025

Day 18 and counting....

Day 18 in our “hotel hospital” 🏥 few update as things have shifted ...

Nov 22, 2025

Brain infusion Friday without Malachi

🧠 Brain Infusion Friday — A Hard UpdateNov 21, 2025Today is Brain I...

Nov 20, 2025

Thursday November 20, 2025

Update this morning ~ 🥹His Batten's team has CONFIRMED, they DON'T ...

Nov 19, 2025

Update on Malachi's surgery

UPDATE on MalachiMalachi went into surgery yesterday Nov 18, 2025, ...

Nov 18, 2025

Day 12 in our “hotel hospital”

Day 12 in our “hotel hospital” has arrived.It’s been rough—no sense...

Nov 15, 2025

Fridays Day 7! Post

This was Malachi barley 24hours before his 157th brain infusion (Th...

Nov 14, 2025

Update #6

UPDATE on Malachi – Day 6Here we are… day 6 almost behind us, and d...

Nov 14, 2025

Update #5

Update #5 on MalachiThese last four days are starting to blur toget...

Nov 12, 2025

Monday Nov 10, 2025 Honest & RAW

UPDATE — Honest + Raw (because I don’t know how to sugarcoat this):...

Nov 12, 2025

***** Update #4******

*******Update #4 ***********(I think, so challenging to focus today...

Nov 12, 2025

Saturday Nov 8th-Update & the power of recognizing a voices vs seeing...

UPDATE ON MALACHI ❤️‍🩹Today has been a whirlwind of doctors and med...

Nov 12, 2025

Update!

Updatethe infection has spread into his blood, still determining wh...

Nov 12, 2025

Brain infusion Friday - Nov 7th, 2025

🚨 UPDATE ON MALACHI 🚨We urgently ask for prayers.Malachi’s brain in...

Sep 07, 2025

Family Update – Our Van, Our Kids, and the Weight We Carry

Family Update – Our Van, Our Kids, and the Weight We CarryIn the mi...

Sep 07, 2025

July 10, 2025 things took a serious turn

Long night!Update1. Possibly picked up something viral, and being i...

Sep 07, 2025

Let's back track some updates July 8th

Please be praying for our Batten's Fighting boy MalachiPost infusio...

Sep 07, 2025

8/1/2025 - One hundred and fifty brain 🧠 infusions

Today Aug 1, 2025 Marks a Profound Milestone:ONE HUNDRED AND FIFTY ...

Jun 18, 2024

In the thick of Medical life

It's been a whirlpool of medical life right now.Let me explain now ...

Jun 18, 2024

In Support of Castillote family

The Support Registry was just created.You can see all support oppor...