Please be praying for our Batten's Fighting boy Malachi

Post infusion #147 was Thursday  ...

Saturday I took Malachi in to Seattle Children's Hospital ER evaluated for infection due to vomiting/ fever. 
Dignoised with another issues, treated with fluids etc, we went home to manage his care.

This evening MALACHI HAS turn for the worst.

Please pray as he's been rush by ambulance 🚑 to Chelan ER,  Malachi was screaming in pain. 
The team has been amazing but he is going to be transported to Seattle Children's Hospital by ambulance vs medic flight as they are able to get him stable.

Infection is brewing somewhere we dont know?, is this Batten's dont know??, or a blood infection,?? All unclear right now, the team here in chelan has been wonderful  and has done an entire body scan, aggressively treating him with antibiotics & pain meds so hes stable enough to transport to Seattle Children's Hospital to be admitted.

*Some videos are disturbing*

Malachi's words through it all, "welp we can check this off my bucket list" this guy...