Apr 06, 2025

Oropharyngeal Dysphagia

Oropharyngea Dysphagia. Apparently that's the word for what Braven ...

Apr 03, 2025

Seattle Children's Dicharge Day!

Looks like we are heading home after 4 intense days in the Seatrle ...

Apr 03, 2025

MAMA, when am I going to die?

Our little guy has hit another roadblock in Moderate Traumatic Brai...

Oct 21, 2024

It's a Parallel World

Two weeks ago Braven woke me up with a scary seizure. His sleep has...

Sep 26, 2024

Colorado Part 2

I started the new antibiotic and it was intense. It wasn't somethin...

Sep 23, 2024

Colorado Trip Part 1

They say when it rains, it pours. That has certainly been the case ...

Aug 26, 2024

A New Season of Support

With David's job being so intense (managing a big house lift/founda...

Aug 17, 2024

Mid-Summer Update

It's been a month or so since our last update. This has been a very...

Jul 15, 2024

"I'm sorry Mama"

Braven asked to go home after a half block on our walk. I glanced d...

Jul 11, 2024

Infection (s) and Iron

Several sweet souls have checked in recently as we have been so sil...

Jul 11, 2024

Dr Braven

(Update transfer from Caringbridge)Dr Braven-June 22, 2024June 22, ...

Jul 11, 2024

Baseline

(Update transfer from Caringbridge)June 17-2024 We made it back to ...

Jul 11, 2024

The end of Hell Week

(Update Transfer from Caringbridge)End of Hell Week. For now. June ...

Jul 11, 2024

911 and ED round 4

(Update transfer from Caringbridge)911 and ED Round 4- June 13June ...

Jul 11, 2024

Seattle Children's Hospital ED

(Update transfer from Caringbridge)Seattle Children's Hospital ED -...

Jul 11, 2024

An Intractable Attack

(Update transfer from Caringbridge)An Intractable Attack - June 8/9...

Jul 11, 2024

Braven's Hemiplegic Migraine Diagnosis

(Transfer from Caringbridge)June 6, 2024: started out "normally" fo...

Jun 26, 2024

In Support of Burkett Family

The Support Registry was just created.You can see all support oppor...