Support Registry Update

Seattle Children's Dicharge Day!

In support of
The Burkett Family
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Looks like we are heading home after 4 intense days in the Seatrle Childrens Hospital ♡

My sister Laura Lobosco created a MealTrain for us and we would also love some support getting the house back under control and organized after a long HARD month of survival. 

We will be returning to Seattle Children's next week for outpatient visits and have quadrupled our therapy appointment load each week.

Bravens aspiration is not under control but we now have the data and medical backup that it is happening and more tools to support at home while we collect more data. 

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