Dec 12, 2025

Year End Update and Merry Christmas to you and Yours

I cannot believe it's December 12. Does anyone else feel like the h...

Oct 27, 2025

10.27

Hi all! It's been a while. I've been intentionally leaning into as ...

Sep 15, 2025

9.14

Addison finished her intensive at NAPA here in Austin two Fridays a...

Aug 29, 2025

I can't believe it's almost September

It's amazing how quickly you can become used to something, isn't it...

Aug 11, 2025

The Last Sunday

I can't even believe it. It's surreal to say that the last Sunday i...

Aug 02, 2025

Two more weekends

Our care team asked us to stay an additional 1-2 weeks earlier this...

Jul 28, 2025

One more weekend!!!

Yesterday we celebrated Andrew's first birthday at the hospital. We...

Jul 20, 2025

Week 10 again

I don't know if I'm counting wrong or just tired, but I think tomor...

Jul 16, 2025

July 15 + 16

Monday, July 14. Addison had a rough day of therapy today. She seem...

Jul 13, 2025

Week 10

Week 10 starts tomorrow. Our discharge date is now August 8 instead...

Jul 08, 2025

Week Nine

Addison is kicking ass. The shunt surgery, despite the shock and fr...

Jul 02, 2025

Week Eight

It's hard to believe it's July and we have entered week eight of ou...

Jun 25, 2025

Not the news we wanted

Addison had an MRI and an MRV this morning and the fluid in her bra...

Jun 20, 2025

June 19

We get to remove the collar in 3 1/2 days!!!! Thought we would neve...

Jun 16, 2025

JUNE 15

I can't even believe we are halfway through June. Sundays at the ho...

Jun 11, 2025

June 11

Short update, but Addison has slept through the night two nights in...

Jun 10, 2025

June 10

It finally feels like we have some predictability. We are in the pr...

Jun 07, 2025

Week 1 Update

I usually wait to write until I feel I have something to say, but I...

Jun 04, 2025

Inpatient Rehab Day #3

We are on day 3 of inpatient rehab, but it really feels like day 1....