Support Registry Update

Week 1 Update

In support of
Addison Stavar
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I usually wait to write until I feel I have something to say, but I haven't updated in a couple of days and wanted to do so. Honestly, progress is slow. We are seeing progress, but it's hard for me to even view it as such given where we used to be. We are still non verbal. Not eating on our own or showing interest in food. We are starting to stand more with a standing "chair". She is working on rolling on the floor with PT and sitting upright (still with lots of assistance) and leaning from side to side weight bearing in each hand side to side. Everything that I think would be appealing to her hasn't been - painting, swinging, ice cream, pouches, apple sauce, etc. It's so disheartening. We are getting some laughs and chuckles each day, which helps. She has throw up the last two nights, but is more regular in her bowel movements on her own. Apparently this will be a dance for the entirety of our time in rehab. It is all frankly maddening. I've got another food on hand that I am wanting to trial. It's a dance of holding the line and not changing course too quickly while also monitoring her comfort. Neuro will check in on Monday about her neck collar. Monday marks 4 weeks, but it will more than likely be another week before that can be removed. We are still dealing with daily discomfort (gassiness and irritability). It comes in waves, and we have been told that this is all a part of the process. I've never been much of a process girlie. I'm a results kinda gal, so the waiting and the slowness are arduous. The unknown even more so. Things keeping us going are company at the hospital, grandparents being here continuously since the accident, being fed, keeping this hospital room tidy (normal things that help mental health are equally as helpful in these circumstances), getting outside frequently (Mueller is a great place to be stuck in a hospital), and watching Andrew grow and change each day. We are truly in awe and speechless of all the prayers and support we have been given. Please do not cease praying. They are more important now than ever. We are still slated to be here for 8 total weeks - planning to leave the day before Andrew turns 1, July 25. 

Prayer Requests: 
1. Addison would take interest in food
2. That discomfort with feedings would cease and we would continually be able to find the perfect nutrition for HER body
3. That she would not throw up again
4. That we can get this neck collar off sooner than later
5. For our lawyer as he handles that aspect of things
6. That Addison would be constantly comforted and at peace. My fear is that she feels trapped in her own body. I pray that that is not the case and that any anxiety would be eased. 
7. That big leaps would be made this week
8. That we don't need to go home with equipment
9. FULL recovery
10. Clarity in decisions and how best to support her
11. Continual resources in navigating all aspects of our circumstances

Two creative ways people showed up this week that made me smile: A good friend shared our news on her bakery business and is auctioning off quilts. Funds will go towards our medical expenses. Addison's old teacher has a lawncare business and offered to take care of our lawn while we are in the hospital. Sometimes you don't know what would be helpful, but people continue to reach out and offer SO much support. Just knowing it is there and that people are praying for our circumstances means everything. It allows us to relax and trust that somehow, someway, everything will be handled and will be okay. Thank you all. More later. 

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Comments

Carol Malone

My heart breaks for all of you as well as for Addison. EVERY DAY, Addison is the first thing that comes into my mind! Every time I think of her, a prayer is said! God, please bring your healing touch to this precious child. πŸ™πŸ»πŸ™πŸ»πŸ’•πŸ™πŸ»πŸ™πŸ»
  • 6 months ago

Sarah Cabiya

Continued prayers from the Cabiya family! Prayers for healing, comfort and fortitude. You are always on my heart. ❀️
  • 6 months ago

Kathy Lane

May Addison be healed completely by God’s Hand and may your family be given His strength and courage to walk this journey. Amen
  • 6 months ago

Cathie Buxie

I pray for all of you and for Addison’s medical team to know the best path for her treatment. I also pray for this precious baby girl and her emotional healing as well.
  • 6 months ago

Texasdanathames

God has a plan for Addison and your family. Know you are not alone and that you are stronger than you think. Praying every day for your precious family~
  • 6 months ago