Support Registry Update

Back to Reality

In support of
The Ramos Family
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Sometimes it is hard to share the realities of our life because it feels like complaining, but that is not my intention. I guess there is no way around that. 

When Winnie is sick, we usually expect an increase in seizures- in frequency, intensity, and length. That has certainly been the case with this illness. Thankfully, it has not been as bad as it has been in the past, but that doesn’t make it easier. 

It will never be easy to watch her suffer. It will never be easy to wonder what this one is going to be like. How long will it last? How bad will it be? Will it stop on its own? 

There are certain seizures that we are more “comfortable” with- the “usual”, predictable ones. But when anything is a little different or off, it sets off the stress in everyone. 

Tonight was one of those nights. She had to have 2 rescue medications. Thankfully, the seizure stopped and she is sleeping peacefully. Please pray that it stays that way and that she will be back to herself quickly tomorrow. 

(Photos from a recent craft time with her siblings 💕)

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