Support Registry Update

Thursday 8/13/2026

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The Jones Family
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Thursday morning update. The biopsy went well yesterday afternoon. He is sore from that procedure. Results should be this afternoon. We have been battling keeping his blood pressure down. He is still in an IV drip for that but they are increasing oral meds to try and get off the drip. Blood work isn’t staying the greatest so they are adjusting meds to try and balance them out. His kidneys really just aren’t wanting to work. 😒 they are starting intermittent hemodialysis in a few minutes. We will remain in the ICU until he can get off the IV blood pressure drip.

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