All Updates

Jan 29, 2026

Colostomy

Syanna has been doing pretty well with her colostomy. We have a pos...
Jan 22, 2026

Colostomy

Syanna got her colostomy surgery and is doing pretty well. The surg...
Jan 20, 2026

Hospital stay

We arrived to orlando today to get ready for Syannas surgery on Wed...
Jan 08, 2026

Colostomy surgery

On January 21st syanna will be getting the diverting colostomy surg...
Nov 02, 2025

Syannas health

On Tuesday we have a big appointment for syanna at Arnold palmer ch...
Aug 14, 2025

Syannas health

So i haven't posted in a while on here but things have been very ro...
Mar 17, 2025

Infection

On the 15th Syanna developed a lot of redness and pain around her g...
Mar 13, 2025

Water irrigation

We officially started the water irrigation system called peristeen ...
Feb 03, 2025

Stool test

We were finally able to get the stool sample from syanna so now we ...
Jan 29, 2025

Bowels

Syanna has had a couple of bouts of diarrhea 1 of them had dark red...
Jan 25, 2025

Gtube

syannas gtube didn't want to work properly yesterday and caused me ...
Jan 23, 2025

Sick

Syanna woke up with 104.2 temp flu, covid, strep and RSV was negati...
Jan 20, 2025

Bowel movement

Syanna has been having a hard time having a bowel movement and was ...
Jan 19, 2025

Bowel movement

syanna is currently going a week without having a bowel movement so...
Jan 15, 2025

Culture results

Earlier today I got syannas other colon culture results and it show...
Jan 15, 2025

Motility testing results

We found out that syanna has neurogenic bowel. The Dr said her Gast...
Jan 13, 2025

Motility testing results

Tomorrow at 4 pm the Dr is going to call us to talk with us about t...
Jan 11, 2025

Test result

Syanna got sick with a on and off fever on 1/6, which only lasted 2...

Support Registry

Browse all the options to help, in one place.