Support Registry Update

Syannas health

In support of
Syanna's Journey
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On Tuesday we have a big appointment for syanna at Arnold palmer childrens hospital. We will be seeing a colorectal surgeon to discuss diverting colostomy surgery for syanna. Syanna has been dealing with ongoing severe bowel problems and haven't had any success with any traditional treatments also no success with anal botox injections. The diverting colostomy is our only option now to give syanna the best quality of life and without pain and discomfort 

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