Support Registry Update

Water irrigation

In support of
Syanna's Journey
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We officially started the water irrigation system called peristeen with Syanna. She definitely doesn't like it but we know it will help her the Dr in Orlando wants to give her 6 weeks to see how she does and of everything is working good for her then they will start weaning down some of her laxatives   we still don't know how long she will need to use this system but if it helps it's worth it    on another note syanna has been sick for the past few days with parainfluenza type 3 and has a very bad cough that is causing her to vomit so please pray that she recovers from this virus quickly

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