It was Saturday morning and Stetson was now a week old….we were so happy to see him get off his blood pressure medicine and off the ventilator….we had an appointment scheduled that day with the neurologist to go over the MRI results….i was still blind to the fact what was really happening….i was praying everything was clear and it wasn’t brain damage….we met in the family room….the neurologist had a strong accent that made it difficult to hear every word….He did confirm that Stetson has an hypoxic ischemic brain
injury….i still didn’t realize what that really was….i asked what areas of his body will be affected and what can we expect…. Because of the location of the damage it will affect everything he does but especially his coordination….He said it was a bit hard to tell the extend of it….but he will possibly be diagnosed with cerebral palsy when he’s older….  my heart started to sink and everything else seemed like a blur….we left the hospital and went to our room at the Ronald McDonald house still in shock and completely broken….our dreams, our life and our future looked shattered and how are we supposed to go on….we are a very independent family that loves to travel and how are we supposed to that with a child that has disabilities…. This really wasn’t ever the life I thought I’d have or ever wanted….i really didn’t want it….i wanted to be a “normal family” and do all the things other families do and now what….what will our future look like? We asked our family and friends to give us some time and space as we spent the weekend together as a family, that was very healing to spend time with the girls….just being together was what we needed….We had started to feel the pain of being torn apart as a family….my heart broke every time I had to leave Stetson behind or I’d had to leave the girls i felt torn all the time….i am so thankful for my mom and sisters who spent many hours and nights babysitting the girls….we slowly pushed on just living on the prayers of our family and friends….slowly 1 week turned to 2 then 3 weeks and it didn’t seemed we were making much progress….