July
In support of
Sienna Caines
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Sienna Caines
Hello everyone!
It's been a busy couple of weeks. Our girly turned FOUR at the end of June! This birthday was extremely bittersweet- it's not how we envisioned her 4th birthday but we're grateful she is here and working hard everyday to try and regain some kind of functional movement.
Sienna received her theratog suit which gives her muscles sensory input to try and help activate them. It also gives her trunk the support it needs to help her extremities move. She's been doing well with it so far. The goal is to get her wearing it all day which is essentially "therapy all day". She is building up tolerance to it.
Sienna continues to go to the neuro chiropractor 3 times a week. We have seen improvement to her general sense of calmness and alertness despite the little plateau she has reached with her therapies. This is expected as progress isn't linear but it still makes it difficult especially when she was starting to do so many great things. We know she'll come out of this plateau and continue in a positive direction forward.
We have initiated discussions with a 3rd therapy intensive for hopefully the beginning of 2027 at Infinity neuromotor development center in Iowa. They have many tools such as EMFIELD high energy inductive therapy to rehabilitate the motor system. They also use therapeutic lasers to reduce inflammation and help mitochondria gain energy to support brain function. Stem cells is still hopefully an option for the near future but we need final approval from her cardiologist as Sienna has a fake valve in place of her melody valve and there is not much research supporting stem cells with valve replacements.
All in all Sienna is doing well but we are taking it day by day. It is still really difficult to believe that this is our life but we are doing everything possible to support recovery for our girl and could't do it without you all. Thank you to everyone for your donations/ shares/ emotional support for our girl.
With gratitude and love,
The Caines Family
It's been a busy couple of weeks. Our girly turned FOUR at the end of June! This birthday was extremely bittersweet- it's not how we envisioned her 4th birthday but we're grateful she is here and working hard everyday to try and regain some kind of functional movement.
Sienna received her theratog suit which gives her muscles sensory input to try and help activate them. It also gives her trunk the support it needs to help her extremities move. She's been doing well with it so far. The goal is to get her wearing it all day which is essentially "therapy all day". She is building up tolerance to it.
Sienna continues to go to the neuro chiropractor 3 times a week. We have seen improvement to her general sense of calmness and alertness despite the little plateau she has reached with her therapies. This is expected as progress isn't linear but it still makes it difficult especially when she was starting to do so many great things. We know she'll come out of this plateau and continue in a positive direction forward.
We have initiated discussions with a 3rd therapy intensive for hopefully the beginning of 2027 at Infinity neuromotor development center in Iowa. They have many tools such as EMFIELD high energy inductive therapy to rehabilitate the motor system. They also use therapeutic lasers to reduce inflammation and help mitochondria gain energy to support brain function. Stem cells is still hopefully an option for the near future but we need final approval from her cardiologist as Sienna has a fake valve in place of her melody valve and there is not much research supporting stem cells with valve replacements.
All in all Sienna is doing well but we are taking it day by day. It is still really difficult to believe that this is our life but we are doing everything possible to support recovery for our girl and could't do it without you all. Thank you to everyone for your donations/ shares/ emotional support for our girl.
With gratitude and love,
The Caines Family
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