While our son was in surgery we ran out to our car to get on zoom so we could have our follow up appointment with his hematologist regarding the transplant.

The doctor said that normally he would be really disappointed with the numbers and quite frustrated with the outcome of his transplant.  Even though his body is doing well, it’s not even close to where they want him. (Although he did have almost 700,000 cancer cells to every 1,000,000 in his body.  So he started out with a lot)  Todd did not receive full MRD (remission). But, just recently they just did a study, called the Midas, that was similar to all of Todd’s abnormalities and they have found that it is responding to treatment just much slower and that gives the doctor hope that Todd could possibly be the same. He said with someone of his condition they are hoping his body eventually responds to the treatment it just may take longer.

So he will go back on 2 immunotherapy drugs ASAP.  They are hoping to get him where they want in the next 2 years. If they can’t, there is nothing more they can do. We could try a pill that isn’t FDA approved for myeloma but it would be an experiment.  He will have another biopsy in April(ish). 

One of Todd’s complications is that he has a lot of abnormalities that aren’t in line with normal Myeloma. 

But we are hopeful. It’s what we live on these days. Hope, faith and prayers.
 

*I told him I needed a picture to post with the update and he wouldn't cooperate so this is what you get.