Words of Support

Donate, send meals, or lend a hand to include words of support.

Chris Villalba 9 months ago • with donation

Uncle Chris and Aubrey love you both very much

Sheena St. Clair 9 months ago • with donation

Sending your family love and hope!

Anonymous 9 months ago • with donation

Thank you for sharing your journey and your strength and vulnerability. I live on The Loop and will miss seeing Roman and Stella trick-or-treating this year. My thoughts are with you and your family on your journey.

Ali Mainhart 9 months ago • with donation

Wishing you love as you transform your home for your family.

Jess Stevens 10 months ago • with donation

❤️

Audrey 10 months ago • with donation

Sending lots of love and prayers to you all

Elaine Espericueta 10 months ago • with donation

Roman and Stella are daily in our prayers.

Debbie Kaflowitz 10 months ago • with donation

You are amazing parents. You not only provide the best quality life for your children, but you actively advocate for our entire for the entire NPD community!

Libby & Everson Bahorik 10 months ago • with donation

🩵🩷

Sara McNabb 10 months ago • with donation

Support Registry

Browse all the options to help, in one place.

$8,509.24 Raised of $150,000 goal

111 Donations

Donate

Recent Update

Happy Rare Disease Day! - Today is Rare Disease Day. A day that shines a light on families like ou...

Gift Cards, Meal Support and Volunteer Support are not requested.

Steph von Ohain
Gave $1,000.00 (Largest Donation)
Anonymous
Gave $50.00 (Most Recent Donation)