Happy Rare Disease Day!
In support of
An Accessible Home for Roman & Stella
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An Accessible Home for Roman & Stella
Today is Rare Disease Day. A day that shines a light on families like ours who live in the space between hope and uncertainty every single day.
For most people, it’s just another date on the calendar.
For our family, it represents a life we never expected, one shaped by hospital rooms, countless blood draws, research updates, experimental treatments, and a kind of love that runs deeper than words.
For our family, it represents a life we never expected, one shaped by hospital rooms, countless blood draws, research updates, experimental treatments, and a kind of love that runs deeper than words.
As many of you know, Roman and Stella live with a rare genetic disease that affects nearly every part of their bodies. Their journey requires constant care, medical equipment, therapies, and treatments. But it has also taught us what courage, resilience, and unconditional love truly look like.
They may not move through the world or communicate like most children, but their lives are deeply meaningful. Their impact is real. And their story matters.
If you feel moved today, we invite you to support their journey.
Your donation helps us continue providing the care, therapies, and opportunities that give them the best quality of life possible.
Your donation helps us continue providing the care, therapies, and opportunities that give them the best quality of life possible.
Most of all, it helps us keep showing up for them the way they deserve.
Thank you for seeing our children.
Thank you for standing with rare families.
And thank you for helping us keep hope alive.
Thank you for standing with rare families.
And thank you for helping us keep hope alive.
With so much gratitude,
Jillian & Donald Arnold
Jillian & Donald Arnold
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Denie Sidney