Words of Support

Words of Support

Donate, send meals, or lend a hand to include words of support.

Alex

Sending your way vibes of love and light….
  • 5 days ago
  • •
  • with donation

Mary

From a mom/grandma who knows how important it is to love our children with all our being. My prayers for your family, your strength and energy for each day, and for Roman and Stella to always be immersed in the beautiful love of your family ❤️
  • 10 days ago
  • •
  • with donation

Denie Sidney

I love your social media content. It helps me feel supported as a fellow rare disease mom.
  • 20 days ago
  • •
  • with donation

Denie Sidney

I am a rare disease mom who is a widow. Thank you for helping me feel supported by sharing your story. I LOVE your book. I purchased a copy. My daughter LOVES butterflies. Keep showing the world the power of love Jillian and Arnold. My daughter, M...
  • 20 days ago
  • •
  • on 'Happy Rare Disease Day!' update

Noreen Roth

I will keep Roman and Stella in my prayers. I also pray for strength, patience and courage for you both for each day. God bless you all. 🙏🏻🙏🏻🙏🏻🙏🏻
  • 2 months ago
  • •
  • with donation

Jenny

Happy birthday Stella!
  • 2 months ago
  • •
  • with donation

Debbie fusillo

To a beautiful loving family that I will keep in my prayers for a cure!!
  • 2 months ago
  • •
  • with donation

Julie

Happy Birthday sweet girl!
  • 2 months ago
  • •
  • with donation

Denie Sidney

I'm a medical mom of a daughter with 3 rare syndromes. I had to give up my career too. My husband became terminally ill and we took a serious financial hit. We qualified for a bathroom remodel when my daughter was 9 years old. A huge blessing. I w...
  • 3 months ago
  • •
  • with donation

Dale

Praying for you all daily.
  • 4 months ago
  • •
  • with donation

Support Registry

Browse all the options to help, in one place.