Support Registry Update

SDR Update - May 17

In support of
Presley Bautz
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Post-SDR Surgery Update – May 17

Today brought another big step — Presley got out of bed and, with assistance, took a few small steps for the first time since surgery. It wasn’t easy, and throughout the day she battled a headache, nausea, and pain, but she still pushed through. We got her into her wheelchair a second time, and in the evening, she was the one who asked if she could practice sitting up.

She’s starting to feel more motivated to do the things they’re asking of her in therapy — she told me, “I just want to walk again.” Hearing that from her was both emotional and empowering. She’s so determined, and her strength continues to blow me away.

Last night was a bit better in terms of sleep, though nights are still tough. The pain from the day tends to catch up with her by bedtime, so evenings are usually the hardest.

We’re still on the post-surgery floor at BC Children’s Hospital, and we don’t have a confirmed date yet for when she’ll transfer to the Sunny Hill therapy centre inside the hospital for intensive rehab. For now, we’re focusing on one day at a time.

Thank you again for all the good vibes, prayers, and encouragement. Your love is felt deeply, and it’s helping us stay grounded through all of this.

With love,
Paige & Presley 💛

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Comments

Sarah Hjelsing

She’s such a resilient little warrior!!!! With her brave mamas lead, she’ll do amazing things. We are all rooting for you little Presley! So much love from the Hjelsings.
  • 7 months ago

Elaine Wiebe

So happy to her hear the good progress with Presley. She’s a strong girl . You’ve got it girl!’ Paige you are a good support to her as well.Love you both. Take care!🥰
  • 7 months ago

Shirley Wiebe

Happy to hear she is progressing in small steps.Presley is strong and a tuff girl with determination. She has a caring mom who is always there for her. Love and take care!❤️
  • 7 months ago

Rhonda McConnell

Enjoy those “small wins/small steps” every day will just get better especially with her drive and strength to walk. Amazing little girl you have raised, Paige! We are rooting for you both. Thank you for sharing your journey!!❤️
  • 7 months ago