Support Registry Update

Purple Day!

In support of
Jordan Lee's Journey
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Today is Purple Day - an epilepsy awareness day. We all wore purple, but I do believe Jordan wore it best! :) There is so much that could be said about epilepsy it is sometimes hard to know where to start or what to share. I will say, that if I had a magic wand and could change anything for Jordan (and for so many others), it would be to cure epilepsy. It is a disorder that impacts so many people in different ways.  It is unpredictable, complex, disruptive, and it takes Jordan away from us. Our biggest concerns have always been safety, and epilepsy can be life threatening. I am always happy to talk more about her experience with those interested, but for now, I am happy to be able to share that for the last few months, Jordan's epilepsy has been well managed - and that is a tremendous gift we don't take for granted. 

 

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Comments

Salmeri77

Anne, I hear you loud and clear about Jordan's epilepsy. If I could I would heal her. You and your family are so supportive of Jordan through all her struggles and successes. You are an amazing mom and advocate! I will continue to send healing energy your way! ❤️
  • 8 months ago

Rhondaprucker

Look at her!!! She is definitely wearing it the best. I also wish there was a cure. It's just not fair. I am glad she is doing well. Go Jordan!!!
  • 8 months ago

Judithsjm

Happy Purple Day Jordan! You are doing so well! I wish I were closer so I could give you a big hug, sweetheart 💗
  • 8 months ago