I’m sitting here in the rain today, listening to worship music, and reflecting on the unique situation that we’re walking in. I wanted to open up a little bit more than I usually would on social type platform because I think this situation is so hard to understand until you’ve walked in it. 

 

The decision to open up a support page and having to ask friends and family for support has been an incredibly humbling one for Jacob and I to have to make. On the one hand we feel so blessed for the money we make and we know there are folks in much tougher situations. But on the other hand, we had no idea what a special needs child like ours truly needs to get the best chance of success. We’ve been told over and over again by other special needs parents that we HAVE to get on Medicaid because no one can afford the medical bills without it. “Unless you have Bezos money,” was one of my favorite quotes. Unfortunately, we have not gotten Colton approved and the waitlist is years long. 

 

This road is going to be long and hard and not just financially. We’re grieving some of the plans and dreams we had for our future child. And trying to understand what life is going to look like. We believe God can do miracles! We also have to accept that He may not heal Colton in this life. 

 

BUT the most important thing we’ve learned in this journey so far, is that God will use our suffering and Colton’s fight for His glory. Colton brings us so much joy despite this not being what we want for him. I hate to see our baby suffer but I also see so much potential and love in his little body already. ❤️ 

 

I hope this might help someone that’s going through something similar or that it might shed some light on the complicated feelings around having a medically complex baby. 

 

We love and thank you all for your support!