Support Registry Update

Day 1 after heart transplant ❤️

In support of
Oakley Werley’s Miracle Heart
View Support Registry
Wow, yesterday was hand down the longest day of my life. One day felt like an entire week. We prayed so hard that everything would go smoothly and all the moving parts would align. So so much goes into a transplant it’s truly a miracle. After 14 hours we finally got to see Oakley and we were just ecstatic with how amazing she looked! Her entire body, now pink! She went from O2 is the 70’s to 100% O2. Just incredible and all because another family said yes! I’ve been thinking about the donor family so much… amidst their pain and suffering they made the decision to give other children a second chance. It’s just pure love. 

Around midnight the nurses let us know she took the blankets off Oakley because her temps were starting to rise but that it’s also normal to have higher temps after surgery. As the hour went on her temp just kept climbing and climbing and then her blood pressure got very low. They did an echo and said the heart was having a hard time acclimating and the cardiac output did not look good. She had 5 different nurses in her room drawing up different meds to try and get her numbers to look better and overall make her new heart happier. If the meds didn’t work they said she would possibly need to go back to the OR or be placed on ECMO (essentially like bypass so the body can just rest and the ecmo machine takes over the workload). To be completely honest I’ve never been more scared in my life… 

We then sent out an update post and the prayers flooded heaven. Within an hour things began to improve! Temps kept slowly (very slowly) coming down. Her temp got to 105 last night and now it’s at 99.8! Thank you God!!!! 

I can’t even begin to tell you how much your prayers mean to our family. We fully believe in the power of prayer and we know God is with Oakley every step of the way! From the absolute bottom of my heart thank you for all your love, support, and prayers.

This is a journey… not always the easiest one but God has been so faithful and the team her at TCH… unbelievable. I am just so grateful. Keep flooding heaven with your prayers!!! My beautiful little warrior… you’re a fighter! You WILL get through this Oaks! One beat at a time. 

Kennidi Werley
about 1 year ago

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Comments

Carolyn LePage

Please take care of yourself too! The prayers will keep coming! God is with you!
  • about 1 year ago

Amy Thompson

Continued prayers for your precious warrior!! Prayers for you, your family, and her entire team as well!!
  • about 1 year ago

Thompsonsara13

Praise God for all miracles! Oakley you are so strong and so loved! And family you are incredible strength and love for her❤️🙏
  • about 1 year ago

Jackieborcherding

When I learned of her heart transplant yesterday, j cried tears of joy. I’ve been praying for her new heart for 6 months each day. I prayed all day yesterday for Oakley and asked others to. I prayed for her today and praise God he lowered temps. I thank Him for strengthening Oakley and giving her excellent caretakers and wonderful, loving parents. I am in awe of how God is working in her life. All glory to our gracious God
  • about 1 year ago

Liz Skidmore

I’ve been waiting for this update. Shouting praises for God’s handiwork in the details, care of that precious heart given to Oakley and answering the prayers of His people during the touch and go. Thankful Oakley fever is under control now and things look more stable. Can’t wait to hear more updates as you can. Love and prayers!
  • about 1 year ago

Katie Naville

Hello Kennedi! I came across your sweet Oakley’s story on instagram several months ago. I follow along daily and my family prays for your sweet girl and your family every evening at dinner. I am just in awe of the strength you all have, but I know it is because of the strong faith you have! I love the way you use your story for God’s glory and give him all the credit. What a testimony! Anyways, please know we are celebrating Oakley’s new heart and continuing to pray for a complete success with this transplant. All our love and prayers from Indiana!
  • about 1 year ago

Betsy Wildey

One beat at a time is right 👍! She comes from tough stock and I know these temps will keep coming down back to normal! Soon she will be free of monitors & pick lines and home in her own bed !! And your family will be under one roof again 🙏🙏🙏🙏🙏💞🌞💞🙏
  • about 1 year ago

Diana Burgess

I cannot stop thinking about Oakley, the donor family, and your entire family. You're all in my thoughts. Oakley is so brave and strong thanks to your family's support system and she has all of us cheering her on! Sending love and strength from Canada 💕
  • about 1 year ago

Kripa Marie

So.glad to have come across this page to see the story of a fighter and the power of prayer ...She truly is an inspiration and will touch many lives ♥️ Prayin for this sweet one and the beautiful family that decided to give life to other children despite the heartwrenching situation they are in♥️♥️ Can't wait to see the miracle that she is and the lives that she will touch♥️ Luv from India♥️♥️♥️
  • about 1 year ago

Cori VandeKieft

Continued prayers and positive thoughts!
  • about 1 year ago

Ksdroog1

Continuing to keep you all in our prayers. Praying for Oakleys care team. Thank you for all the updates We serve a mighty and awesome God.🙏🏻❤️
  • about 1 year ago

Corina Garcia

I met Oakley through instagram and i've been watching her journey i've cried watching your updates, i've cried reading every beautiful message you've posted. now I see how wonderful God is working she has a new heart. and I know it's not easy as a mother to see your children like this. but now this morning I looked at your statuses and we prayed with my children on the way to school for that little body to adapt to that new heart. and i know that God gave that heart he will make that heart work well in Oakley’s body. we will continue to pray for your beautiful daughter and family.
  • about 1 year ago

Jnnyhayden

Praying praying praying Jesus heal Oakley fully . Bless & watch over her & the donor family giving her the gift of life 🩷🙏
  • about 1 year ago

Claudia Marco

My prayers are with your family! She is a wonderful and strong warrior!
  • about 1 year ago

Nadia Badot

All the fingers crossed in België, go Oakley, GO 🙏💪
  • about 1 year ago

Lori Vesely

Praying for your sweet girl and all of you. I woke up and first thing I did was to check your updates. Said so many prayers! Please God watch over Oakley!
  • about 1 year ago

Glenda.lopez03

Praying so hard for Oakley.
  • about 1 year ago

Robin Hicks

Father God please heal Oakley completely in the Mighty Name of Jesus Christ our Lord and Savior 🙏💝🙏
  • about 1 year ago

Mjanssen1950

Blessings to Oakley and you Kennedi and to the entire family. Been thinking about you all daily and often for months now. Praying hard from wherever I am. Love and hugs.
  • about 1 year ago

Melissa Cooper-Ray

I just want to say thank you for updating us on this wonderful journey. Despite all that is going on, so many who don’t even know you are following along and you could choose not to update us. I have been praying for you, and your whole family since I found your page. This is good news that that’s made a turn around! Praise Jesus!!
  • about 1 year ago

Tracy Ward

Praying so hard for Oakley! And for y’all also. IN JESUS NAME SHE WILL BE HEALED!
  • about 1 year ago

Jill B

Continuous prayers for Oaks and your family. We don’t know your family personally but have come to love Oaks over the year and have been rooting and praying for her and her second chance at life.
  • about 1 year ago

Jill Robles

Thank for the update! Been praying for Oakley. I’m so glad that she got a heart. Thank you so much. Jesus God is so good. We love you so much Lord. Just keep Oakley healthy and keep her heart beating. Thank you again, Lord. Love Oakley so much thank you Jesus.
  • about 1 year ago

Kiara Gomiller

Continued prayers!! Thinking of you all at this trying time. #oakleystrong #onebeatatatime
  • about 1 year ago

Renee Silva

I woke up several time during the night a said prayers for Oakley. She is in Gods hands.
  • about 1 year ago

Kim Murguia

I started following your amazing family’s journey about 4 months ago. You are the BEST mom and Oakley is one special little girl. Your husband and Kash are such strong supporters. The amount of prayers being sent up must be record breaking because you ALL are so, so special. I know each day will better and you guys will be home together soon.
  • about 1 year ago

Gardengirl0214

Thank you for keeping us updated throughout the day yesterday. You ate amazing for having done that!! Of course I will continue to pray for your sweet girl and for your family!
  • about 1 year ago

Cheryl Initiative

Your CTI family continues to come alongside you in prayer! 🙏 Oaks is a fighter and we KNOW God is with her on this journey. May you find peace in His presence and may God continue to be glorified! Sending big hugs!
  • about 1 year ago

Kelly Duebber

Praise God!!!!!
  • about 1 year ago

Yvette Coleman

Youbkeepnfighto by Oakley. As Mommy says one beat at a time.
  • about 1 year ago

Wendy Stevens

God is Good...praying for continued healing through this mircle heart.
  • about 1 year ago

Shannon Salstein

One beat at a time, wow! You’re not in this journey alone, we are all here with you praying for Oakley and all of you! Your faith is a beautiful thing to witness! Sending love and prayers to all of you!!!
  • about 1 year ago

Gina Peters

Prayers headed your way. As a heart mom, I empathize with all of your feelings. We will all continue to pray and also pray for the donor family.
  • about 1 year ago

Nancy B

She's always in my prayers, keep praying for Oaks
  • about 1 year ago

Nancy B

She's always in my prayers, keep praying for Oaks
  • about 1 year ago

Jessica Wilde

❤️❤️🍀🍀❤️❤️
  • about 1 year ago

Karen Fraser

Prayers to you all positive thoughts coming your way
  • about 1 year ago

Barbie Carrasquillo

Praying and thanking!!! God has each one of you in His hands. He knows each need, it does not matter if it has been verbalized or not, he just knows our hearts. May God embrace you with his incomparable love.
  • about 1 year ago

Acm wood

God is good! Your family is a testament to the power of faith in Him! Continued prayers for your amazing little girl!
  • about 1 year ago

Leti Garcia

Thank you, God! We have been lucky enough to witness a few miracles and I an so grateful God is showing you his glory! Our hearts are with your family! Try to sneak in a nap! We love y’all!
  • about 1 year ago

Kelsey Featherston

I have been following. As a mom I couldn’t imagine the pain and happiness you experience. As a therapist you are doing amazing trying to cope from what it appears. I’m proud of you! I know I don’t know you, but you have touched my heart. Prayers for your family and that beautiful girl!
  • about 1 year ago

Jerry Ray

Continuing to pray for little Oakley... God Bless Y'all so much. 💙💚
  • about 1 year ago

Rotondotiffany

Continued prayers for healing and recovery ❤️‍🩹. Prayers for Mom and Dad as you watch her go through this next stage of TX. And for the nurses and doctors taking care of her. May they know what she needs and may God guide them as they continue to help Oaks heal and recover.
  • about 1 year ago

Agibson

Continued prayers for you all!
  • about 1 year ago

Sylvia IJben

Dear Kennidi, I follow Oakley and your family and pray for her. I hope she gets better soon and can have the life she deserves, free and with a good health. Love and greetings from Germany ( we are Dutch).
  • about 1 year ago

Kirsten Kiernan

Oakley you are a fighter, Prayers and hugs are coming your way from New Zealand. I have been following your story for a while and am in awe of your courage and inspiration - you’ve got this Oakley
  • about 1 year ago

Follower Follower

So happy she got her Mircale heart sanding so much love I am a CHD my self I know exactly what ye are going through
  • about 1 year ago

Ivette Bruyn

Love and Hugs momma❤️ Prayers
  • about 1 year ago

Marcia Boerman

Your testimony alone is proof of God's love and guidance. As His plan unfolds in Oakley's life we continue to b awed at His faithfulness for each Werley family member - 🙏 continue, send the specifics - trust every 12 hrs there is improvement ❤️
  • about 1 year ago

Kay Stephenson

So thankful for lower temps and better heart function! It takes time for the body to adjust to new organs. My daughter had kidney/pancreas transplant eight years ago. There were some very scary times. God is so good and He hears our prayers! I’m praying for Oakley and family.
  • about 1 year ago

brenda gibbner

I have been following you since I saw a reel on Facebook, my friends son has a chd and eventually might need a new heart. Prayers for the next few days and that her new heart will do what it should.
  • about 1 year ago

Stephanie Martin

Sending prayers, you got this Oakley you are truly a fighter and we love you!♥️
  • about 1 year ago

Another Momma

Prayers from PA. You've got this Oakley🩷
  • about 1 year ago

Boermanjb

Praises, praises and more praises….. prayers, prayers and more prayers from Holland’s Harvest drive Boerman bunch!!
  • about 1 year ago

Ellen Moore

Praying for Oakley in South Carolina.
  • about 1 year ago

Cindy Alvarez

I'm praying for your little warrior and all of you ❤️ 🙏
  • about 1 year ago

Donna Nance

It’s also a marathon not a sprint. We experienced a lung transplant in our family and we had to adjust our expectations for the long haul. UPS and downs but he’s almost 9 years out now. My prayers are with you
  • about 1 year ago

Jean Dery

Praise the Lord. Continued prayers for your little warrior and for your family. Prayers will continue.
  • about 1 year ago

Brooke Paradise

Sending love and healing to Oakley and the entire family!
  • about 1 year ago

Dawn Weller

Continued prayers for Oakley, your family, the donor family and every single clinician who takes care of her!
  • about 1 year ago

Ashley Donovan

We are praying for you oak!
  • about 1 year ago

John Elledge

My whole family is praying hard for you all ❤️❤️❤️🙏🙏🙏🙏🙏🙏
  • about 1 year ago

Nicole Ferrara

We love you guys we are praying hard for Princess Oakley and you!!!! She’s a warrior she’s got this!!!
  • about 1 year ago

Another survivor

I’ve had 2 transplants myself.. from what I’ve been told the first 24 hours after both transplants were touch And go- but it always improved. So happy that Oakley got her miracle and can’t wait to see all she does with it🩷
  • about 1 year ago

Susanashworth14

Thank you Mrs Werley for taking the time to update us all. Please take some time for yourself while you can! I am confident that Oakley is going to pull through this and be the precious little angel we all know she is! 💗
  • about 1 year ago

Jenny Martin

Praying here in Cincinnati for your sweet girl
  • about 1 year ago

Raymonde Perry

Praying hard for your girl! So thankful she is doing better today. Sending hugs to you mama.
  • about 1 year ago

Lisa Stecker

Praying so hard for sweet this sweet beautiful baby girl and her family 💕 first thing I did when I woke up was to come check on her
  • about 1 year ago

Marie Byrd

Praying 🙏🏻🙏🏻🙏🏻 here in Burlington NC without ceasing!
  • about 1 year ago

Tiffany Corey

I was born in the 80s with a CHD and am in awe of how much the medical advances have come along since my very first surgery. While I never had a heart transplant I can relate to Oakley's story in alot of ways. I found your post on Instagram several months ago and have followed your journey and prayed for her daily. I rejoiced and cried with you every step of the way. I know every recovery will be a journey of it's own, so I will continue to cover Oakley and your family with prayers. We serve a faithful God and loving Father. He will carry you through this.
  • about 1 year ago

Maddie Garnes

We are praying for you oaks! In Asheville NC. We love you ! You’re so strong!
  • about 1 year ago

Jimchatel

Thank you for the update and we will all continue to pray!
  • about 1 year ago

Dawn Salter

Sending huge love from across the pond in England. I think your whole family are amazing! I have been following your journey and it has made me decide to say "yes" should the unthinkable happen to my gorgeous kids. Keeping Oakley in our prayers.
  • about 1 year ago

Bridget Schatte

We believe in miracles! And we believe in OAKLEY!!! We love y’all - we won’t stop praying. 🙏🏻
  • about 1 year ago

DeAnn Cox

Praying for Oakley and was so happy to see she got her new heart! Prayers today for a much better day!
  • about 1 year ago

Cottoncop1

Keeping Oakley and the family in my thoughts and prayers! Sending lots of prayers for her body to get use to her new heart and to keep fighting to get stronger!
  • about 1 year ago

Bonnie Eash

All glory to God for this heart for Oakley! We pray in Jesus' name that her body accepts it and she becomes strong and healthy and able to do anything she desires! Father, strengthen these loving parents as they continue to fight for Oakley's life and trust you. May their faith stay strong and even become stronger! Thank you, Father God, for your great love and faithfulness!" We are praying with you from Florida having heard about Oakley through a family member.
  • about 1 year ago

Bonnie Eash

All glory to God for this heart for Oakley! We pray in Jesus' name that her body accepts it and she becomes strong and healthy and able to do anything she desires! Father, strengthen these loving parents as they continue to fight for Oakley's life and trust you. May their faith stay strong and even become stronger! Thank you, Father God, for your great love and faithfulness!" We are praying with you from Florida having heard about Oakley through a family member.
  • about 1 year ago

Savannah Mullis

Praying from one Transplant family to another God is in control! Love from Florida
  • about 1 year ago

Kristen Heck

Our family has been praying for Oakley. We will continue to lift her up in prayer and your family as this has been a long time coming. So proud of the hard work her little body is doing. We have and will continue to pray for the donor family and the incredibly selfless gift they have sweet Oakley ❤️
  • about 1 year ago

Abby Hoppen

God hears our prayers and we are storming the gates of heaven for our girl! Continued prayers for strength and recovery.
  • about 1 year ago

Dana Lauterbach

Praise you Father God , continue to keep Oakley in your loving arms , continue to give peace and strength to her family ! So happy to hear this great news ❤️ We'll continue to pray 🙏
  • about 1 year ago

Connie Willoughby

Praying for Oakley’s continued recovery! So thankful that God answered prayers last night and today! We are continuing to pray for precious Oakley and her family! ♥️♥️♥️
  • about 1 year ago

Katie Mallalieu-Rogers

I’ve been following your story for a few months now from the UK and praying for the miracle you needed despite knowing what that would mean for another family. My family are sending you all so much love, thoughts and prayers for Oakley’s recovery and the journey ahead. Oakley is a true warrior as are all of those by her side cheering her on every beat at a time. Prayers too for the team around you and the team that performed her life changing operation. I also hold Oakley’s donors family in my thoughts too because the gift they’ve given in their grief is something truly incredible. Sending all the love to everyone one that’s part of Oakley’s life and journey. Xx
  • about 1 year ago

Lydia Thorn

Praying for you princess 🤎 Your strong, your brave, your beautiful
  • about 1 year ago

Anne Haines

Kennidi…I met your mom through our Vineyards Bunco Babes group. I have been keeping Oakley and your family in my daily prayers. I also added all of you ( including the donor family) to my Bible study group’s prayer list. God bless you all…praying for continued healing ❤️🙏
  • about 1 year ago

Julie Delnick

Kennedi, I recently began following your incredible journey and will continue to do so. I knew your momma when she was little and Mark and Lisa and their siblings were HS friends. The ties that bind right??? Prayers will continue for your precious baby and her family as you navigate these waters. Stay strong 🩷💪🏻🩷💪🏻🩷💪🏻
  • about 1 year ago

Orla Rogers

Praise God. What a wonderful testimony she’ll have for the rest of the days 🙌 ❤️ Praying for her body, for rest to recover and strength to heal. Bless you as you cover her with prayer and love. Mind yourself too ❤️❤️
  • about 1 year ago

Another survivor

Hi! Idk if you’ll read this- but I have a big medical history as well. I wasn’t born w a congenital defect but due to other illnesses I went into heart failure- twice. And have received a heart transplant twice now. I found ur account after I had gotten home from My second transplant last year- Oakley and I were admitted 2 days apart last February. So it’s been crazy to see how long it’s been. But both transplants have been their own unique experience. Recovery is hard- it was harder this past time bc I’m now a teen- vs when i was like 10. But just know that I’ve been Praying for Oakley so much over the past like 10 months since I’ve seen ur account and story. I can’t wait for her to start healing and all the amazing things she will Get to do with her new heart!
  • about 1 year ago

Jennifer Bruin

Reading all of the support and prayers coming in worldwide….what a miracle and so very many hearts that your family has touched! Love and hugs, and forever prayers!
  • about 1 year ago

Amandalee52612

I've been thibning of her all day and praying for you all!
  • about 1 year ago

Kelli Weaver

I will be continuously praying for Oakley. I know God has her in his hands and that this heart is her miracle heart. I pray that she gets through the rest of her recovery with no pain and no problems. I can’t wait to see your precious girl run and play and be a normal little girl like she so deserves. Praying also for your family. Thank you for taking us on this journey with y’all so we could pray and love Oakley too. Much love
  • about 1 year ago

Chasity Hill

Prayers still coming for this sweet angel. I love seeing the testimony through your baby. Miracle are possible. Thank you for keeping us all updated 🫶🏻🙏🙏
  • about 1 year ago

Trisha Gilliam

Dear Lord.. please provide for all of Oakley’s needs to improve with each new day and each heartbeat. She is a strong little girl and a little fighter! Hold tight to her Lord I pray for her parents and the donor family. Please bring peace to these donors who were willing to provide a miracle gift to Oakley. God bless them all.
  • about 1 year ago

Maureen Lorei

Your family is mentioned in our prayers each day at FBKA- First Grade🥰
  • about 1 year ago

Lynn Kamp

What a road you've all traveled. .. I was so happy to hear that she is better this morning. My prayers continue. Sending love and hugs as well.
  • about 1 year ago

Mary Green

To God Be the Glory 🙏 Cootinued prayers for Oakley her family and medical team.
  • about 1 year ago

Jeanette M

Sending prayers from Sydney Australia. 🇦🇺 I have been following Oakley journey being Chd myself. Keep going Oakley, you can do it,
  • about 1 year ago

April Hamlett

She is such a strong, beautiful little girl and is such a light and always positive even after all she has endured. I have been praying and will continue to pray for her, her family, the doctors and nurses. God is good and can do all things. Praying so hard 🙏 🙌
  • about 1 year ago

Heatherlynn2026

Praying for you all throughout this journey!
  • about 1 year ago

Geraldene Wasylowich

Sending much love and prayers to all of you. Just met Gramma and Clive in Mazatlan sending a quilt to you Oakley ❤️
  • about 1 year ago

Amckethan

This is just astoundingly great news. We are so happy for how far your family has come.
  • about 1 year ago

Lynnelle Pierce

Kennedi…your neighbors in Michigan care immensely! We just heard about Oakleys condition and are thrilled to be added as warriors before the Throne! Children give us such great happiness but also our greatest pain because we love them SO much. God is your Refuge and Strength.. ALWAYS present during this difficult time. Sending our love and a huge hug!! Tom and Lynnelle ❤️🙏
  • about 1 year ago

Jody Frank

Sending you a ton of strength!
  • about 1 year ago

Donna Mitchell

As a former PICU/NICU Nurse, I have seen so many amazing miracles. Praying 🙏 for Oakley and all of you. Your amazing faith is such an inspiration! Sending lots of love from Montana.
  • about 1 year ago

Cheri Russell

Psalm 145:3 CVE You are wonderful, LORD, and you deserve all praise, because you are much greater than anyone can understands. ❤️
  • about 1 year ago

Joslyn Duncan

God Bless Oakley, little sweetheart ❤️, I am praying 🙏 for her. I lost a son because of a heart issue when he was 4months 5 days. His heart was backwards. So my prayers are big for her. And Vincent ❤️ is watching over her. She will be fine. I am from Canada 🇨🇦 God Bless You All.
  • about 1 year ago

Joslyn Duncan

God Bless Oakley, little sweetheart ❤️, I am praying 🙏 for her. I lost a son because of a heart issue when he was 4months 5 days. His heart was backwards. So my prayers are big for her. And Vincent ❤️ is watching over her. She will be fine. I am from Canada 🇨🇦 God Bless You All.
  • about 1 year ago

Joslyn Duncan

God Bless Oakley, little sweetheart ❤️, I am praying 🙏 for her. I lost a son because of a heart issue when he was 4months 5 days. His heart was backwards. So my prayers are big for her. And Vincent ❤️ is watching over her. She will be fine. I am from Canada 🇨🇦 God Bless You All.
  • about 1 year ago
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