Wilder’s Progress (8/7/26)
In support of
The Veek Family
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The Veek Family
We are riding the rollercoaster that is Wilder’s medical journey. The highs and the lows.
The highs: Our little guy has started smiling, holding his head up for a few seconds at a time during tummy time, and reaching for toys when laying on his side to play. He has even been known to give the rare tiny chuckle if you happen to be silly enough for him to laugh at. He has also been packing on the rolls and is weighing in around 13 lbs. He brings us so much joy every day!
His cardiology checkup went well and they are satisfied with the current function of his heart!
The lows: Wilder is still working towards bottle feeding and it has been an up and down journey. Including some straight up refusals to take a bottle or just running out of energy quickly. Our speech and swallow therapist has not been the most helpful with this. She didn’t have much feedback besides keep doing what I was already doing and that wasn’t working. We had the pleasure of having a magical lactation consultant out to the house and she helped get him taking bottles again. It’s still a lot of work and effort for him to do the the sucking, swallowing, and breathing required for bottle or breast feeding so the progress is slow.
During a routine xray to check tube placement the radiologist noticed his liver was enlarged and recommended further imaging. An ultrasound revealed a growth that they felt required even further testing to rule out anything scary. We are beyond thankful his blood tests have come back normal. The next step is an MRI which will hopefully show there is nothing to be concerned about.
The in betweens: We are still having more doctor appointments than either Wilder and I would prefer to go to each week. He’s much more content and smiley on the days we get to stay home all day. I am not super thrilled with the quality of therapy Wilder is receiving from his current therapists that are provided either through insurance/the state so I am seeking out other resources. All of which are not covered by insurance, but early intervention is so critical. Investment of time and money into high quality therapies will pay off.
We ask for prayers for continued strength and wisdom with Wilder. For the liver MRI to show nothing concerning. That Wilder would continue to grow and thrive especially in the area of eating by mouth.
Please excuse any typos as sleep deprivation is hitting hard core.
The highs: Our little guy has started smiling, holding his head up for a few seconds at a time during tummy time, and reaching for toys when laying on his side to play. He has even been known to give the rare tiny chuckle if you happen to be silly enough for him to laugh at. He has also been packing on the rolls and is weighing in around 13 lbs. He brings us so much joy every day!
His cardiology checkup went well and they are satisfied with the current function of his heart!
The lows: Wilder is still working towards bottle feeding and it has been an up and down journey. Including some straight up refusals to take a bottle or just running out of energy quickly. Our speech and swallow therapist has not been the most helpful with this. She didn’t have much feedback besides keep doing what I was already doing and that wasn’t working. We had the pleasure of having a magical lactation consultant out to the house and she helped get him taking bottles again. It’s still a lot of work and effort for him to do the the sucking, swallowing, and breathing required for bottle or breast feeding so the progress is slow.
During a routine xray to check tube placement the radiologist noticed his liver was enlarged and recommended further imaging. An ultrasound revealed a growth that they felt required even further testing to rule out anything scary. We are beyond thankful his blood tests have come back normal. The next step is an MRI which will hopefully show there is nothing to be concerned about.
The in betweens: We are still having more doctor appointments than either Wilder and I would prefer to go to each week. He’s much more content and smiley on the days we get to stay home all day. I am not super thrilled with the quality of therapy Wilder is receiving from his current therapists that are provided either through insurance/the state so I am seeking out other resources. All of which are not covered by insurance, but early intervention is so critical. Investment of time and money into high quality therapies will pay off.
We ask for prayers for continued strength and wisdom with Wilder. For the liver MRI to show nothing concerning. That Wilder would continue to grow and thrive especially in the area of eating by mouth.
Please excuse any typos as sleep deprivation is hitting hard core.
Comments
Jess Dowd 20 days ago
Bonnie Russell 20 days ago