Support Registry Update

Update on seizures and back pain

In support of
The Steinhaus Family
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Today Andrew is much more alert and acting himself. He's no longer having issues with word finding or confusion, though he does not have memory of his seizures or anything that happened yesterday.

Andrew was not able to fully understand directions or stay still for the full brain and spine MRI yesterday, so they prioritized getting the brain images. They have some incomplete images of the spine that they're using to make some education guesses as to what is happening there.

It's confirmed that there are numerous cancerous lesions in the brain. It's suspected, but not yet confirmed, that there is one tumor on his neck, one in the middle of his back that created the compression fracture, and some evidence of disease in the spinal fluid. It is very rare for pancreas cancer to metastasize to the brain, and this likely changes Andrew's prognosis quite a bit.

After a repeat spine MRI and perhaps another CT on Monday, the doctors will start to put together a radiation plan. The three options being discussed are: 
1) Aggressively target the whole brain and spinal cord with radiation with 10 sessions over a two-week period.
2) Do radiation on the whole brain plus just the tumor in his neck, which is thought to be the biggest one.
3) Target only the brain metastases.

They started Andrew on steroids last night, which could prevent progression in the short term. It's also helping to bring down inflammation and pain and maybe sharpen his cognitive abilities some too. We hope to see another good day tomorrow and then get more information about what's next on Monday.

Andrew is looking at his phone right now for the first time since Thursday before he went to sleep. If you've reached out to him, please message him again. It will take a while to get back to people, but we appreciate everyone who is thinking of and praying for us.

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Comments

Kathy Campbell

Elyse- Praying for you and Andrew. ❤️
  • 5 months ago

Susan Wacasey

Prayers for you both ❤️
  • 5 months ago

Karell Roxas

Hugging you both tight and relieved to hear he's feeling more alert today. We love you both.
  • 5 months ago

Beth Current

Continuing to pray for Andrew, you, the whole family & all the drs! So happy to hear this good news!🎈💞🙏🙏
  • 5 months ago

Alma Zeev

Hugs to you both ❤️❤️❤️
  • 5 months ago

Teri Garner

Always praying, always loving all of you.
  • 5 months ago

Donna Beasley

Praying for you both. My love to the kids too! Love Aunt Dondee
  • 5 months ago

David Tamayo

We are thinking and praying so much for the entire family 🙏❤️
  • 5 months ago

Mwaka Yawawa

Praying for you Andrew. Also praying for.you Elyse, that God continues to give you strength in Jesus name 🙏
  • 5 months ago

Deb Long

Sending prayers and huge hugs! Keep the faith !
  • 5 months ago

Bonnie Ballard

Andrew has a wonderful smile no matter what life is throwing at him. What a special sweet person. Prayers and strength being sent from the Ballards in Atlanta, Ga.
  • 5 months ago

Vee Kelly

Thinking of you Elyse. Sending healing thoughts Andrew’s way!
  • 5 months ago

Audra Mitchell

Sending prayers your way for Andrew and your family!
  • 5 months ago

Chris Reynolds

Andrew, my heart breaks for the pain of the journey you are on. At the same time I rejoice that you are my brother in Christ and your reward is the same that I am looking forward to. As Paul tells us eye has not seen nor ear heard neither has entered into the heart of man all that God has prepared for us in Christ Jesus. There is hope there is joy there is love and there is life. Praying over you and your family with tears and rejoicing at the goodness of God. We've never met I yet love you brother and I thank God for the gift of you. I am praying for your sweet beautiful family who love you so much. Not hard to understand why. Grace and peace to you now and always in our wonderful save your Jesus.
  • 5 months ago

Rita Flannery

Andrew is one tough guy!! Sending all our thoughts and positive energy your way.
  • 5 months ago

Mary Alice Cashin

Praying for your healing and continued strength! May God Bless you both!!
  • 5 months ago

Meredith Conway

Thinking of you constantly and praying the doctor's plan is guided by God. Love you guys.
  • 5 months ago