Support Registry Update

Septic and typhlitis

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The Manning Family
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It's been a while since I've updated, and I wish it was because things were going amazingly well. Unfortunately, that's not the case. After 2 weeks of really strong chemo Willow's counts dropped, Blood and platelet infusions were keeping her steady and stable. On Friday May 15th Willow started to decline really fast throughout the day, By 5:45 Willow spiked a very high fever of 103.4. I got her to the ER within 15 minutes because we are staying at Ronald McDonald House, unfortunately it wasn't enough. Within 24 hours, she was diagnosed with Typhlitis, it's brought on by strong chemo killing her gut bacteria and causing swelling. She is stable but not out of the woods yet. She's not allowed to eat or drink anything and has started TPN which is total nutrition through her port. On top of that we found out she was septic. Multiple antibiotics were started and CT scans confirmed diagnosis. Her room flooded with teams from infectious disease, surgery, GI, along with her oncology team all coming up with a plan to help her get through this. Right now she's extremely uncomfortable. Her belly is tender and hurts. She's hungry and thirsty all the time, but we can't give her anything to help. Her fever has stayed down but she still needs Tylenol, and Zofran to help with nausea as well as 2 antibiotics. Thank you to everyone who is giving our family the calm and space we need at this time. Know we appreciate you all for all of the love and support we feel for willow and our entire family we couldn't do it without you. Let's hope and pray the next update has better news. 

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Comments

Debbie Conterato about 2 months ago

Oh my. Prayers lifted for all of you. She is a rock star and she will get through this. God will guide the way. 🙏🏻💕🙏🏻

Kristie Lambert about 2 months ago

I’m praying every minute of every day for sweet Willow.. sending you all lots of hugs and prayers.. keeping you in my heart always ❤️

Kim Starr about 2 months ago

Saying prayers for Gods Miracle for Willow. Prayers for healing and psin relief. And rest for all.

Louise Cerpa about 2 months ago

Hey Ed. It sounds like you have a wonderful care team in place that is doing all they can to advocate for Willow. If I could make one suggestion, if it has not already been done by your advocacy team, the Healthwell Foundation is a wonderful resource for people battling cancer. I have found them to be extremely gracious and helpful. I will continue to pray for your family and especially your baby girl! Hopefully you get better news soon.

Shannon Vasquenz about 2 months ago

Oh dear I'm so sorry for this setback. I'm praying fiercely for her. Praying for all of you 🙏💖. Sending hugs and much love! ❤️💖 Aunt Shannon xoxo

Kimberly Cunnally about 2 months ago

Sounds extremely rough for her. I'm still praying extremely hard. My heart goes out to the whole family

David Aslesen about 2 months ago

Prayers from Baker Memorial Church for God's wisdom for medical staff, comfort for your hearts and healing love for Willow. Christ is with you in all ways.

Wendy Bangs about 2 months ago

Prayers for Willow’s care team and your whole family!

Anitaunrath about 2 months ago

Hello from Toulouse, France. We continue to pray for Willow’s healing. We are 6 hours ahead, so while you all are sleeping, we are praying. While we sleep, we know people in the US are praying. Please tell her Anita and Tom are asking God to heal her of this terrible disease. Sending you all hugs.

Kemasters1020 about 2 months ago

Thank you so much for the update! Praying even more now!! I'm here if you need anything and know that our family and so many at your Baker family are praying for you all! Sweet girl. We'll get through this! She is SUCH a fighter!! 💕 The Masters

Karolynn Cunnally about 2 months ago

Prayers out to Willow & the entire family. Prayers sent

Sandie Benhart about 2 months ago

My prayers are with your family. This feels too hard to bear. I hope God will touch her with peace and calm to continue her fight.

Jake Jakubowski about 2 months ago

I will say extra prayers for a speedy recovery for Willow and her family 🙏❤️🌹

Allan Scales about 1 month ago

Willow, you are so very strong and brave. I know God will be with you and your medical team as you journey. Prayers for strength for all of you - sending our love and prayers, sweet Willow!