Support Registry Update

Blinatumomab

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Blinatumomab aka blina. 
This 28 day cycle Willow is hooked up to infusion 24/7, she will also have 1 spinal done. What is blina? What does it do? Why is blina so crucial in her treatment plan? Blina is an immunotherapy that uses Willow's T-cells to attack and kill the cancer cells. Blinatumomab was on drug trial until June of 2024, at which time the trial was ended early because of the success rate. They found the overall survival and remission rates jumped 20%, that's huge in the cancer world. As I write this a new trial for adults is going on trialing only using blina and NO CHEMO. Now don't get me wrong the risk is huge but the reward is bigger. Blindness, high fever, chills, difficulty breathing, rashes, seizures and to top it off neurotoxicity. That is why when the treatment is started they are admitted to the hospital for very close monitoring. Thankfully Willows body responsed amazing and she came home 3 days later. After a week we have  seen the best blood work in 2 months, her personality is coming back and her body feels better. This cycle we get a "break", next cycle will be hell, then back on blina. 

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Comments

Jeanne Fec 8 months ago

So many prayers heading your way. We all have angels watching over us, and Willow's are going to kick it into full gear.

Jill Luminais 8 months ago

I am glad she is feeling better this cycle. I hope the next will not be as bad as previous. I am glad both you and Aidan are there to be with her.

Debbie Conterato 8 months ago

We give thanks for the small blessings that allow to build our strength for the tough times.

Shannon Vasquenz 8 months ago

Praise God 👏 🙌 This is excellent news!! She is such a brave warrior ❤️. Will continue praying for all of you🙏 🤲

Beth Piper 8 months ago

Hugs. We’re keeping Willow and your whole family in our daily prayers. Good job fighting strong little warrior!!!

Bob Parks 8 months ago

Thank God for good news. Prayers continue!

Kathy Heikkinen 8 months ago

Thankful for any little step forward. May they soon become leaps & bounds!

Laura Graf 8 months ago

Holding Willow and your entire family in prayer as you continue this journey.

Aunt Lizzy 8 months ago

This is so good to hear. Prayers for Willow and the family